Living with BFS at 26

[RunnergirlRun]

I've just been diagnosed with BFS. I'm 26.

I'm on a stress reducer which definitely stops the symptoms at night but they seem to be spreading and getting worse during the day. Even though I've seen a neurologist who assures me that although he'll see me again in six months to confirm, there is nothing "wrong". But the twitching is starting to "get" to me.

I've had twitches everywhere. Even in my tongue. Please will someone tell me this gets better?

Also, I love to rock climb but whenever I do it seems to exacerbate the situation. Any suggestions?

I hate this. Even though I'm not "ill" and I'm thankful it's nothing worse, it's so invasive.

 

[constance41]

leah 79 you are very young to be worring about this. read bfs in a nut shell on this site. it will give u a head start and answer some of your questions. i have it in the tongue to. as for it going away , i will be honest with u and that no one can really answer that question as we are all diffrent with diffrent circumstances that brought all of us here. be well and welcome to the site other will also help u here and everyone here are all increadible people with honest opinions. sorry for some of the spelling

 

[RunnergirlRun]

thanks 4evaypoppypassport...

I know I'm very young and I should not fixate.

I've been reading some of the posts here and they've been helpful but I can't help but wonder if there's something going on that my gp and the neruo aren't thinking of.

Eric,

I've been in the woods many times, but never have been "accosted" by a tick. Is there anything else I should know?

I'm getting my thyroid tested on wednesday and I'm finding myself wishing that's the problem because at least it's identifiable and explainable (not to mention treatable).

 

[coolcat]

most people who were bit never got the bullseye rash and it could be from as long as twenty years ago....the tick is not the only vector as it was proven that the flea and mosquito could transmit it....
eric