Living with BFS: 7+ Years

[NHLplayersJaromirJag]

Hey everyone. By experienced, I mean with practice, not theory. I've been dealing with fasciculations for around 7 years. But to avoid anxiety, I usually don't spend time reading up on it online. It usually makes things worse. So I just came up with few questions I wanted to ask those who who know more...1. Is it possible for BFS to never go away? I've been dealing with it for 7 years or so. So I am out of hope it will ever leave me.. But it doesn't hurt to ask.2. Exercise intolerance/fatigue.. I can't say I've had to deal with this, as far as I can tell. Is it possible I'll just start having those problems, eventually? Or if it didn't happen for so many years, it's unlikely?3. New issues.. I've recently been dealin with a new sort of pain in my left side of head. It's kinda.. "fluid", very hard to describe. Maybe it doesn't have to do with BFS, but it does feel like some sort of parasthaesia or neuropathic pain, or just something the like. I don't feel a literal "source" where it may come from. It may be a tootache, since those nerves can be complicated, but I'm just clueless. Feels like pain for no apparent reason really. So my questions is... I'm just turning 23 in june. As you can say I started twitching relatively early. I've been managing so far.. But for example this new pain.. Right now it's not that bad but 2 days ago I could barely cope with it. If it's a new BFS thing and it will be coming back to me once in a while.. I just wonder how many other weird problems I'll have to deal with once I'm older. Are new issues likely to happen? Should I prepare myself to have it much worse in 10 years?I think that's it for now. It's just.. I'm pretty young, I started dealing with fascics early.. And now I started to wonder.. How BFS will be evolving for me as I get older.

 

[MarioMasher]

It is entirely possible for BFS to never go away. In fact I would bet most of us will deal with it in some form or another (or at least intermittently) throughout the course of our lives. Sooner or later it just becomes one of those things like a big nose you will learn to get used to.Exercise intolerance can come or go, or not. It really just depends on how severe your BFS is at the moment. They tend to go hand in hand. If you ever do get it don't worry. Pretty much everyone here has had it at some point.New issues? Sure, you name 'em. But they always change or go away. One thing I suggest is keep a diary of what is really bothering you at the moment. Then look back on it in 3 years. You will be amazed that a symptom you were freaking out about three years ago is something YOU DON'T EVEN REMEMBER ANYMORE. Keeping a journal is a godsend because it really will lay it out for you how much BFS tends to change. And once you see it never gets worse, it only changes presentation, it is hard to take it seriously as much of a fear anymore.