ChristinainWonderl
Member
The last three months have truly been the most trying and darkest times of my life. I began twitching on October 9, 2013. I woke up in the middle of the night to my right calf twitching and, to a lesser extent, my left as well. I did the usual initial investigation on my own and feared the worst. By the next day, my twitching had become widespread throughout my body but seemed to be, and still is, concentrated to my right side. Since then, I have twitched everywhere on my body and, yes, even my tongue. I also have the mild cramping and dull pain that comes with BCFS. I have had a dull pain in my upper right arm for two months. The pain in my upper arm is not consistent but seems to increase when I engage my muscle. I cramp in my feet, my claves, my hands, my neck. I am 43 which makes this a little more concerning. My initial blood work performed by the general practitioner was all normal and I was sent with a referral to a neurologist. Neurologist number one did a clinical (strength test) and told me I was fine. She told me that twitching was just twitching and it was nothing more than that. She seemed a little dismissive of my concerns so I sought out another neurologist after a couple weeks. Neurologist number two seemed more concerned. She did a clinical (strength test) and found no weakness but scheduled an EMG the next day with the neuromuscular specialist. One month into twitching I had my EMG performed and it was clean except he saw one fasciculation. The specialist did tell my that by the time twitching presents, disease would be in one's system for six to nine months prior to the presentation of symptoms. Meaning, the EMG should reveal results. I do have a follow up visit scheduled for the end of February for my next EMG and I am terrified. I am trying to listen to the reason in my doctor's words, but I am really quite concerned for my next exam. If not for my faith, my husband, and this forum, I think I would have lost the ability to function weeks ago. While I am grateful for my initial results, I am very anxious about what the follow up holds in February as my symptoms seemed to have progressed. I contacted neurologist number two once the cramping increased and she did inform me that cramping was totally normal in this situation and that they were very confident that they diagnosed me properly. I will add, about a week prior to the onset of twitching I had just gotten over a cold and I was under a lot of stress due to finals. Yes, I finally finished my bachelors degree at the age of 43. I also run a business and have a step daughter who thinks I am the devil. I am hopeful that this is stress related and not something more sinister. Thank you all for contributing to this forum; it's good to know there is support from others going through the same situation. ristinaL91