Life Before Arm Problems

Nocturniscope

Well-known member
I have to say my life was so much better before I started with this problems. I used my right arm every day, every time, for hours without getting any pain or heavyness sensation, I had any tremors on my index finger. I felt confortable every time with my body. I felt strong and my muscles would NEVER hurt.Now, I cant use my right arm for much time before it starts to hurt and feel fatigued. I cant sleep some nights because my back starts to twitch like hell even waking me up. When my fingers twitches they are very distractive and they make it very hard to concentrate on something.I did 4 emgs because it is very hard to accept so much problems are trully benign: The first emg was made when this started and it was ok. 5 months latter, on the second emg I heard so much noise, I saw so much waves on the screen and I asked the doctor if they where fibrilations or psws and she said that they were voluntary contractions that they where happening because I was so nervous. When the report came I was impressed by the fact that it came up clean. All the noise I heard and all the waves I saw where considered nothing to the doctor that tested it.So I was not convinced and I thought that the doctor missed something and them I went to another emg clinic and did my third emg on the same day. The doctor looked at my reflexes and said they where normal. During the emg, after she inserted the needle on my muscles, she started to poke them with a hammer and wait, and after she did that on 14 muscles on my body she said to me that she could not find nothing, even a fasciculation.15 days latter I was still not convinced and went to another doctor to perform another emg. That doctor was faster and did not poke my muscles after inserting the needle. After testing 12 muscles, she said that she not found even a fasciculation. That all my reflexes where normal and that I do not have ALS.All the doctors who did emgs doubted me when I said that I fasciculate every time.So it is benign and I am glad it is, but it is a pain. I am not the same person I was one year ago. I feel my muscle cant tolerate the effort they could before this started. They fatigue faster, recover slowly and the burn pain I get when I use them is very intense. I did not had unintentional movements on my fingers. I did not get pain on my muscles when waking up without doing any exercise. My muscles were quiet and I could concentrate without them distracting me.My life was so much better.I pray for god every day for this to stop.Maybe some day he will listen to me and I will wake up feeling stronger and with my muscles only contracting when I command and not when they thing they should.
 
With BFS I find I have good and bad days. Nothing to do with the symptoms- they will wax and wane. But more to do with how you mentally deal with your BFS. You are going through a tough patch at the moment, it will pass. I have them as well. But as you said it is benign..you are not going to die from it. Take it into perspective, there are lot of people out there with things a hell of a lot worse than BFS. Yes BFS is a pain in the butt, and it does create some 'quality of life issues' but stewing on it aint going to make it go away..in fact it will make it worse! Yes you drew the BFS card sure, like all of us. But I can tell you life is too short to start saying 'woe is me' and it is no good reflecting on life before BFS..where does that get you? Nowhere. Yesterday is yesterday it has been and gone..focus on today and tommorrow, focus on the postives and focus on making the most of out short time on this planet. Take hold of you life and and enjoy it! If you do that, you find a lot of your issues will soon become part of your yesterday...been and gone! BFS is as much if not more of a mental issue as it is a physical one.cheers..stay positive and smile..I am watching now !! ;) Rodger
 
I hear you. Life was better before this all started but you know what? Many people have it so much worse. There are no guarantee's in life and be thankful that you are healthy and that you have a benign illness. I know it's hard but you just have to put one foot in front of other and move forward.
 
Nocturnus.... there are many "benign" conditions out there that people live with and it does distrupt their lives. Restless Leg Syndrome, Fibromyalgia, Allergies, ect... However, you just have to accept it and move on. Look at the good things in life when you feel down. That is what I do and it makes me feel better.
 

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