Left Eye Twitch: Need Neurologist Advice

[codenamegoblin]

Hi, December 16 I had an episode of Right middle ear muscle spasms it lasted the whole day, I took flexiril 5 mg and it has subsided since then, last December 23 I had a muscle twitch on my right foot I took Flexeril 5 mg it seemed to help but then I had twitching in my legs, thighs, calves and abdomen since then., Last night I started to have twitching in my left eyelid, I went to my neurologist and will be scheduled for EMG next week, she told me that she thinks it's not ALS. My question is Can we live normally with this disorder? I am scared and the twitching in my legs I can manage, but it's the eyelids that seem to bother me more...I I just need some success stories right now. ThanksPeterSorry for the double post I just think the support group is a much better forum for my query. Thanks

 

[Gracer]

Well, it depends on how well you generally appreciate yourself. Living with non-killing but emotianally uncomfortable disease like ours requires not only acceptance of its benign nature, but sometime quite a lot of pain tolerance, for example. We need to learn how to support ourselves with symptomatic treatment (pain releifers, antinaxiety meds, sleeping pills) and proper day schedule (look who's saying - a lady went up at 7 am on jan 1st!!!! very regular but maybe not so healthy!).In fact most of active veternas here represent success stories - yes they all live with daily twitches, with pains, cramps, dizzing, gait issues, swallowing issues etc.It is possible, believe me.

 

[codenamegoblin]

Thank you Yulla! I also have bilateral tinnitus it started last August 1, 2012. High pitch rings on both ears. It is reassuring that people do get through BFS and on with their lives...

 

[Gracer]

Yep some of fellows also complain for that. usually constant tintinnus is worth to check becasue of possible troubles with ear nerve (common knowledge is like the brain formes that high pitch sound in responce of slight decrease in incoming signal), but it is also known that often nothing at all is found and this sound may be explained as overprocessed arterial blood noise, related to hearing cortex hyperexcitation or vortex-like turbulent blood flow caused by neck circulation issues (very frequent here). TMJ (also very often in BFS people) is another commonest reason for tinitnnus.

 

[Gracer]

At least for intolerable or distracting fascial twitches myorelaxant injections bring some relief (botox), and you may ask heer - I think some fellows tried it/