Learning About Fasciculations

[LittleyMilton]

Hi all,I'm new to this site, and the forum has been very calming to me. I've been having fasciculations for about 6 months now. It started in my right arm and now have had it almost everywhere possible, with the occassional hot-spots. I went to my doctor in July with the report of fasciculations and because she referred me to a neurologist I started googling. Thanks to the googling I started to panic and was sure I had a terrible disease. Now I'm six months in and I've learned to at least not panic all the time. This is already a huge improvement for me, but the fasciculations are still going strong.I have had an EMG performed and had all blood tests - everything came out clean. The neurologist (had 3 appointments with her) said she "was not impressed by my symptoms" and I have been speaking to an other doctor who told me to calm down and wait for a couple of months, the twitching should be a lot better by then. So didn't have the diagnosis of BFS (I'm not even sure if the neurologist knows this), but they let me go saying that from their perspective there is not something seriously wrong with me. This should be a relief, but thanks to all the twitching and shaking, I'm still freaked out every once and a while.The thing I'm worried about now is that my left hand is constantly shaking. When I'm trying to read a book, I can feel the tension in the muscle of my hand going on and off, on and off. This makes my hand shake a little bit. It's not the same like the normal twitching, because it is there constantly (where the other twitches come and go). I also have some weird sensations in my left hand, where my hand sometimes feels a bit strange (don't know how to descibe it). I was wondering if other people have also experienced this (the shaking of a hand)? And I'm also wondering if the twitches for some people om this forum have stopped? I have not read a story about someone who was suffering from twitches, where it has come to an end.Once again, I'm very happy with this forum because it has calmed me a lot, knowing that the twitches does not have to be life treatening.Cheers!

 

[MsMaverick]

I do also have this in my hand. It feels like the arm is tensed when it has no reason to be therefore causing it to tremble. Like you I have been given the "all clear". A year into this and my twitches have calmed considerably but not stopped. I do however ignore them for the most part. I also hope that someday they go away, but either way I can LIVE with it .

 

[JohnnyRocket]

Lots of people here have hand tremors, including myself. That set of symptoms and the strange feeling you speak of is not indicative of the nasty disease. Sensory symptoms are quite common among us benign twitchers. Also, do not despair just because your neuro failed to provide an official BFS diagnosis. Most neuros just refer to our symptoms as benign (not harmful) and just leave it at that. Based on your symptom history and doctor visits, you are surely in the right company with us BFSers. Welcome.