Late Stage Lyme Disease: Whos the Novice?

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C

coolcat

Well-known member
now listen very carefully and close your mouth...I almost died from late stage lyme disease...I know everything about it and you are dead wrong...how dare you say the stupid things you said...attacking llmds...who the hell are you...and by the way I have every right to express myself as well...suzyQ you are the novice...you say you are in the medical field...I DONT THINK SO...dont attack me because I speak the truth... go ahead and suffer and suffer some more because other people such as myself come on this board to help and this is what you do...scare people with your uglyness...are you the spelling police....because I did not go back and check my spelling does that make me stupid..you are very ignorent and if you new about lyme disease you would know why people are not bieng diagnosed....as for myself I have my lofe back and no I dont have bfs anymore...so exuse me for trying to help...just because you had a bad run in with a doctor does not mean that you should be mean to others...I went to a real llmd and there are alot of fake ones out there....by the way I posted the NATIONAL INSTITUTES OF HEALTH website where it is said that it can be a presentation of lyme is proof enough for you....that is the government......so I will leave you with this I dont know if any of you have a benign condition or not but I can tell you that what is going on with bfs is not normal in some of the folks on this website and I am saying to get tested but then again those tests are unreliable because they are not looking for lyme or digging deep they dont want to find it and that is the truth....so have a nice day and if not suffer...
eric
 
you are so smart! that is why you are still on this chatroom....again I dont twitch anymore but you do how sad....
eric
 
Eric:

The following may surprise you because I will not be addressing the lyme issue. You and I have both stated our opinions many times and don't think the board needs further argument from either one of us. What I am going to write is very sensitive, and I want you to know that I am in no way criticizing you or trying to get a leg up in the lyme debate; let us leave that aside. You are a man who knows, and has known some kind of pain or another. It is to this pain that I wish to talk to you about. I would not bring it up in a public forum but you have brought it up first and so, therefore, I believe that it is now open for discussion. If you think otherwise, then I am sure you will tell me. Believe me when I tell you that I am taking my own kind of risk in even writing this to you.


First of all would you feel comfortable divulging your age? Do you have any family? A wife, kids perhaps? I am asking you this because of something you once said to me. You said, "that I was a scared young man," which I took as a compliment because I like to be thought of as young. I am 45 and I have a wife and two kids who, for some lucky reason, really love me. I am hoping that you enjoy this kind of relationship with someone too.

Another thing that you mentioned that I have pondered over is the death of your sister. She was so young, what an absolute tragedy that must have been. I too have lost people that were close to me in that way and so, I think anyway, that I understand the kind of pain that you must have felt, or still feel. You yourself were very ill with a high fever the very night that she passed away. Do you think, that just maybe, you feel some guilt over the fact that you could not be at her bedside, because you were worried about yourself? I was living in Europe when I got the call that my father might die. I decided that I would not go to be with him because I was really short of cash and I was hoping that he might pull through. In hindsight I made the wrong decision, I didn't get a chance to tell him that I loved him and that he had been a great father. I felt guilty about this and it made me treat people differently, although I did not know that until relatively recently. I offer this to you in the hope that it will resonate with your own experience and perhaps, lead you to evaluate your method of presenting yourself. What might your life become if you dedicated the kind of energy you show on this forum; into some other avenue. I once wrote a post about energy and you may find it of interest. I have never put forward an old thread for perusal before, but I have decided to breech my own rule about this.



I hope the holidays are kind to you and that you find the peace that you seek.

Basso
 
I thank you for your kind words...yes I did lose my sister and it was a shock...I feel that I was not very supportive to this group and I do apologize for that..I guess it is true that I have gone on a lyme rampage thinking that almost anyone can have it...I say this because I am finding out that anything neurological can manifest with twitching..it does not have to be a bad thing...I just found a friend at work who thought that her husband had lyme disease and that he has a lot of neuro problems,of course when I talked to this young man he could not remember what I had just said to him just two minuetes before...I asked him do you have twitching and he replyed he has never twitched...i asked his wife about his tests that he had taken and they had told me that his pet scans showed alzhiemers disease and lactase in high amounts in his spinal fluid...she asked me if it was possible to be lyme and for the first time I said you need to get the best doctor for this as by this time he has brain atrophy...he was worryed and expressed to me that he did not want to die and that he needed to find out what this was....In my opinion and I am not a doctor I am worryed that he will not make it...it also showed me that in spite of all of my problems and all the people on this forum our problems were nill...this young man is in trouble and the worst thing is he knows it...it breaks the heart to see him lose his mental capacity and his family...so I apologies to the group as this is supposed to be a support group...as far as suzyq goes she is right about the llmd and some of them bieng quacks but there are a host of doctors that are great and we need to support them...as far as my sister went I had a fever that night and within 3 days I had bfs but I had very major neuro issues like memory problems and hyperpigmentation problems so there was alot going on...so for support I say to stop worrying everything will be alright and by the way my cousin had als and he was not like anyone here I wont give the symptoms but they are way different...so on this day I wish EyeoftheWild and everyone a happy holiday and health and happiness for everyday of your life...so lets drop the lyme thanks
eric
ps my cousin is still alive and the progression stopped....
 
eric,
Basso (as usual) has put all things into proper perspective and has put me to shame. :oops: I'm sorry for my arrogance and lack of compassion for you.

In spite of our disagreements, I do sincerely wish you the best and am sorry to hear of your sister and your cousin. I have four sisters and can't imagine losing any one of them.

I realize we all just want the same thing-for everyone to be healthy and whole. We just have different ways of approaching and expressing it. This doesn't mean we always agree, but we do need to treat each other with respect. It is too easy to be rude to a faceless computer screen when there isn't a live person present. But we are both living, breathing and feeling people and I guess I forgot that. I hope we can wipe the slate clean.

May you and yours have a most healthy and blessed holiday.
 

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