Introducing Myself and Twitching Story

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Echo2478

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hi @ll :)my name is sarah. i am 28 years old and i am from austria (europe). at first i have to say sorry for my english...I'll surely make many mistakes....please don't care about it. thanks. :) my twitching story:in december 2008 my left eyelid started to twitch....i didn't care that much because i know that it is quite common and that many people have that.then i heard strange noises in my right ear....(i thought that this is due to my second sudden hearing loss on that ear...which was treated with cortison in hospital)...but later i was sure that something im my ear was twitching...like mini spasms or so....i still didnÄt really worry about that. but then:about 2 months ago my muscles started to twitch everywhere (tongue, thumbs, fingers, calfs, toes, shoulders, back, throat, buttocks etc.)...this happened only when i was at rest...when i was sitting, or lying on the sofa, or especially when i was in bed....i wasn't able to fall asleep then----it was driving me crazy...the twitching often stopped afters fours hours....and then i didn't get much sleep....so i went to the neurologist in april this year...i told him my symptoms and also told him, that i had a brain mri in march (beacause of the second hearing loss in my life...but i hear perfect again...i'm glad)...he did an eeg and some reflextest...everything ok there...he told me to observe the twitching and to come again if it would get worse.it got worse (maybe due to the observing?? i don't know)----so i went to him again aboit 4 weeks later....he did an emg (the one where they put the needle inside the muscle)...everything ok there.i also told him my last symptoms...my newest ones....which really make me worry a lot and sad, but he said that i am healthy and that i observe meyself too much.my newest symptoms:my chin, sometimes my lips twitch....that is sooooooooo embarassing...i happens mostly when i am at work....i try to hide it by putting my hand before my chin....i hate the chin twitch...it looks soooo stupid. :crying: :oops: and: sometimes my head makes jerky movements.....i am afraid that theses are symptoms of parkinson, chorea huntington, kreuzfeld jakob or so. :whistle: :crying: :oops: or maybe its tics? but i never had any tics as a child....and it's rather uncommon that a grown up gets tics....tics are also very embarrasing...i'd love to hide and not go to work sometimes....my family has never seen that....it's more when i'm at work..maybe the stress there?does anyone suffer from jerky head movements and chin twitch...lip twitch??? i want to stop it. :( it's soo stupid that there is no examination which tells you if you suffer from parkinson or not....it#s just the symptoms. :crying: sometimes i also think that my fingers (on both sides) or my legs or the corner's of my mouth are trembling.....i think...all signs of parkinson. :crying: :oops: :whistle: it drives me crazy and i am soo sad! i just want back my normal life which i had before all those twitching...twitching in the body...ok...but not soooo obviously in the chin, head. :((((((who is suffering from the same symptoms?i am soooooooo really glad about every answer, advice, experience etc. thanks!hope to read you all soon! :) many greetings, sarah
 
Hi Sarah,Parkinson is nothing to worry about at your age. Most of the forum visitors have face twitches. I have them: face, neck, mouth. Nothing to worry about, comes along with the bfs package. You have had several tests that ruled out any mnd. I guess you just have to life with it, like all of us and hopefully someday it stops. Anxiety is a huge feeder grtzBart
 
Hello: I have never had the type of face twitch you are talking about with your chin, but I have had head jerks, and lip twitching. We came, and then they went. This will too. The sooner you learn to divert your attention and relax your face, the sooner it will leave. You've had sufficient testing that you can close the book on the those things. See if you can get something to help you sleep, try some herbal tea, anything to help you relax your body at night (easier said than done I know). Don't stress over it too much. As annoying as it is, it really will go away eventually.Hope this helps some.BlessingsCindy
 
hi bart1 and onescaredlady :D) i am sooooooo happy that somebody has written to me...thanks a lot....hope that new posts will follow. :D) @bart1 parkinson: but there's a form of parkinson which is called "early onset parkinson" :crying: :oops: :rolleyes: :mad: :whistle: ...so it's not just with old people.anxiety....yes....i sometimes suffer from anxiety i think...i'm not sure.thanks for writing! :D) @onescaredladythanks for your post! one question about your head jerks...do you also have the feeling that you can't prevent this movement? i don't know the right english expression for it..i hop that you know what i mean....your head makes this jerky movement and it's out of your control....is that the same with you?this really scares me a lot...i know that worrying and being scared is the worst thing for all those twitching. :rolleyes: ;)
 
Hi Sarah - I have also had a strange ear thing; it was really funny as I was absolutely convinced that I had a bug in my ear (even though I already knew I had BFS/CFS for quite a while). Really with this syndrome you HAVE to have a good sense of humor. Once I thought I was having a twitch - ignored it like usual - and the person I was talking to started staring at my shoulder because I had a bug crawling into my shirt (they thought I was very stoic). You never know what will happen next but if you remain calm about it, most of the time it eventually resolves on its own. Resting & sleeping can bring on the worst cramps for me - probably because when I'm awake or moving around it helps to calm them down so that also doesn't seem unusual. If they don't get so bad that they disturb your sleep or other parallel symptoms, just work them out as if you had run too hard or done something else physical in excess (hot and cold packs, massage). Try to take care of yourself physically, eat well, and find your own way to relax so that the twitches don't take over your life - they seem to feed on attention like naughty children and likewise, distraction of some sort often works to turn them off. ;)
 
wow...a wonder happened...the postings of bart1 and of onscaredlady are back again....great...i am glad...is this due to the help of an administrator or moderator?? thank you guys! :D) @imok....the story with the bug is really funny....lol...you made me laugh...thanks.......do you take magnesium, potassium and things like that?i'm also still worrying that i have epilepsy or so...a strange form of it or that all those twitching are petit mals???
 
Don't think about what illness you have or don't if you can manage that - go to your neurologist and make him tell you what you have and why, what you don't have and why not. This is his job, he should be glad to do it.I did lots of supplements at the beginning (most at the advice of a wellness professional) and ended up with a kidney stone. Arghh! talk about pain. So add just one supplement at a time in regular doses to see if it helps you. Give it a few weeks so you are not giving yourself the placebo effect (which can work great for a day or two also). If you read through this forum you will see what has helped others and can try some things that have helped others. What I take may not have any effect on you and the other way around. That said, I have for a while used glucosamine sulfate which seems to help with joint pain and is medically advised for that purpose. Potassium and a few other things seemed to help for a while but I'm not sure - will try it again. I do know that dark liquors will set off twitching & cramps in me (a small amount will do it) and others I talked to with CFS/BFS so pay attention if you do drink and see if this is true for you. This may be due to their congener content (look it up - it's complicated and someday I intend to bring it up with a dietician). I use exercise and meditation and this helps me out but may not work for others.It seems the trick, with this thing, is to manage it the best way you can with your your neuro's help and your own intuition. Not to fixate on it but to take good care of your health and this in itself will help you.
 
hi there!i still have the symptoms which is described in summer. :mad: whop of you thinks that magnesium and taurine may help???anyone else with facial twitch and head jerks?greetings
 

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