Hi gang,I'm brand spankin' new here so I thought I would introduce myself and say HELLO along with a wee bit of background.Reading a lot of the posts, I see SO many people experiencing the same symptoms that I have experienced, so I won't go into them all.Mine started right out of the blue about a year ago. I started noticing twitching happening, mostly when I was watching TV so I thought it was a hint-and-a-half not to watch so dang much! haha I also had the tremors at night which were far more than disturbing!!!I saw the Dr about it, who ordered a miltitude of blood tests. I don't think I have to tell you the results of those - all normal. I'm sure you all understand the relief I had when I found out it wasn't that dreaded "A" word that Google told me I had!Next step - an MRI. I'm SO glad that he put URGENT on the MRI request because I got it done within 2 weeks! (Canada's medical system can be slow...yes, 2 weeks is FAST around here!!!) MRI came back normal. More blood tests...I was running low on the red stuff by now! All came back normal.Another couple weeks later I was sitting in a neurologists office. That was the first time I heard the term BFS. He told me I had "classic symptoms" of BFS and that he was quite confident that's what it was. Just to be safe, I was off and running to have an EMG done. The man performing the EMG was not just a tech, but a neurologist himself. I'm not sure if that is the norm, but I was happy he was an actual neurologist as well. The only thing he was armed with was the EMG requesition so he didn't know any of my background. He asked, and I gave him a quick run down of what was going on. He looked at me, turned his head a bit to the side and said "it sounds like you have BFS". Second time I heard the name!EMG came back normal - I saw the first neurologist again and walked away with a "confirmed diagnosis" of BFS. I guess the frustrating part for me is that there is no actual way to confirm it. It is diagnosed by eliminating other baddies!!!I've tried a gammet of pills...all with no success. The symptoms come and go...they are with me more than not. I've almost learned how to live with them as hard as it is sometimes.Anyway...I found this place. It's an odd comfort to read about other people going through the same things I have been for the past year.Look forward to "meeting" you all through here.Cheers!
Introducing Myself and Sharing Story
- Thread starter sparky65
- Start date
Thanks for the welcome!I THINK I'm in an OK state of mind with this? I've done all the worrying I can do before I got the diagnosis. With a BSc in chemistry, science is a language I understand so it was natural for me to do my own research in the beginning...which only made things SO much worse. Dr Google is NOT a friend of ours!!! I've learned to be complacent with it...it's still not fun to have, but there's no amount of worry that will make it better, and only a little bit of worry can make it worse!Cheers!
EnglishEddie
Active member
Hey tom...Nice to meet you. You will find some phenominally helpful and genuinely nice people here. Some members have been round the block a number of times with this and are well worth listening too. There is a chat facility aswell , unfortunately i Cant type quick enough to keep up. Hopefully see you around.Dave.
JohnnyRocket
Well-known member
Welcome Tom. You are in the right place. Stay for a while and steer clear of places you don't belong. 
Jerry, it is my legs (thigh) that have the tremors, much moreso in my left leg than the right. It's kind of strange because it is much worse when I'm lying on my left side. If I roll onto my back, it's still there, just not as bad. Actually, the night tremors have really calmed down for a while now. I still have the twitching like mad sometimes though. My right eyelid was vibrating away for 3 days straight and it was driving me nUtSo!!! My lab partner that I work with noticed it and I just told her that I was baby-winking at her at lighting speed! LOL