kickassRachelRachel
Member
Okay, first off, let me introduce myself and explain my situation.I am a 20 year old young woman who has been dealing with muscle twitching all over for about 4 years. I started noticing it back in June 2009 when I was 16, and had myself so freaked out about it after I started googling stuff. (Which, let's agree: ALWAYS MAKES IT WORSE!) My mom told me not to be concerned about it (she has a medical field background, so I trusted her). Eventually, I forgot about it. The anxiety got old, and every once in awhile I'd think about it and scare myself again (I danced ballet until I was 19, and play piano and guitar, so it freaked me out imagining my muscles were weakening!).But anyway, it's been 4 years. I started noticing it again and becoming paranoid back in September this year. I twitch so much. All over my body. I don't really experience anything else though. I finally discovered that benign fasciculation syndrome existed, and realized, OH MY GOSH. This is EVERYTHING I've experienced. Everything. I'm really relieved. I still haven't been to a doctor, to "confirm" it, but my mom seems pretty confident that it's BFS, so that again is reassuring. But I mean, everything y'all are talking about. It's insane. I really thought I was the only one. So it is a HUGE relief. Again, it's been 4 years, and I haven't dropped dead or lost any use of muscles. My eye sight is off the charts good (I've never needed glasses, and can read the smallest letters on those eye charts) I don't really experience pain or weakness except when I would imagine it. But I'm strong enough to do P90X workouts, workout my abs to a 6 pack, go biking, and dance and perform in New York City with my ballet company despite this ridiculous muscle twitching I've noticed, mainly when I'm still or sitting down, and especially when I go to sleep at night. It really has not altered me in any way. I'm 20, and I feel 20, I feel strong and young, but when I fixate on the only seeming abnormality I have, the fact that my muscles twitch like CRAZY, I do the human thing and freak out and allow it to control me. I am 100% healthy, I eat right, and I take all sorts of supplements. My mom is also big on nutrition, I've been eating healthy my entire life, pretty much. That was initially why I was so puzzled as to HOW and WHY my muscles get out of whack. It's unsettling when I'm sitting down and I feel my calf twitch, I shake it, and then it moves to my arm, or shoulder and whatnot. Who doesn't freak out in the beginning? I've recently got into aromatherapy, and so of course I have given it a try, and it seems to help. I've also been learning to just trust God with it. I'm a college student, and when I focus on school, I don't notice it hardly at all. I forget everything when I'm focused. So that is what I would recommend. Find something to distract yourself with. Find a person to laugh with. It's not really a "cure" per se, but, honestly, when I'm hanging out with people or just talking of other things, I feel like a LOAD has been lifted off of me. I can breathe freely. I can relax. And when I experience twitching, I don't freak out!Though I have to say, when you experience a twitch in your head region or near your temples........DANG. That FREAKS me out still. Like it's the first day of feeling a twitch ever all over again. Anything that I feel is near my brain, really sets me off. I have reservations about that region! Haha (though, I have minor TMJ, so that explains more tension/twitching near my temples and face as of late)Or when you feel like there's an extra heart under your ribs that beats for like 5 seconds and then disappears. Again, it's something that spawns a whole lot of anxiety. I still find myself going, "Okay...Maybe I have another disease no one has discovered, maybe this isn't BFS." and then I keep looking up symptoms that match mine identically and all that comes up is BFS. -_- But, again, I am happy for that. I am glad it's BENIGN Fasciculations Syndrome. Can't tell you how relieved I was when I found out about it. I mean, I don't feel "normal" but I feel better knowing I'm not alone. Like I did for about 4 years, thinking I was an alien or something. *I feel so much better now* Whew...so anyway, that's my story. 