Insomnia and BFS/Tremor Symptoms

electricgirl

New member
Hi,

I haven’t been through this entire – excellent -- site yet so someone else may have already addressed the issues I’m about to address in this post.

For several months prior to my noticing BFS/tremor symptoms, I began to suffer from insomnia (something I have virtually no history of). I not only could not fall asleep easily but would regularly awaken about three hours earlier than planned and be unable to return to sleep. Again, there were no perceivable BFS symptoms causing me to awaken.

Also, my own “style” of BFS causes me to have electrical-like “buzzing” tremors throughout my body. They occur when going to bed (this is no longer a problem since I began taking a prescribed dose of 0.5 mg of Clonazepam). The tremors “start up” again in the early morning and awaken me but I ignore them and typically fall back to sleep (I prefer not to take a “morning dose” of Clonazepam even though my neurologist recommended it). I find it odd that these tremors start up at about the same time that I used to wake up early when there were no tremors. When I awaken the tremors are often accompanied by a rather loud “buzzing” or “crackling” sound “in my head” (or some would probably say “in my ears” as in, “ringing in [one’s] ears.” I know this sounds weird, but I had seen another site unrelated to BFS which described such mental “sounds in one’s ears or head” as normal in the period between sleep and wakefulness. I definitley find such phenomena more pronounced when tremors are most intense.

The bottom line in all my rambling is; have others experienced similar correlations with sleep disturbance that preceded the onset of BFS symptoms, and have doctors noted any relationship of BFS to a disturbed sleep cycle (again, before the onset of symptoms – which obviously disturb sleep)?

Regarding BFS’s association with sinus infections, I thought I just had really bad allergies for the last several years. I had serious allergy symptoms (sneezing, runny nose, watery eyes) for most of the year and took over the counter allergy medicine constantly (which I realized could have actually been a factor in my now having BFS). I’ve noticed that since the onset of BFS I’ve had virtually no allergy symptoms! (Only a brief minor bout during hay fever season – not more than a week). I’m thinking that maybe the “allergy” that I thought I had all these years was actually a chronic “sinus infection” and it was a precursor to my present BFS condition. I have to also consider the possibility that my excessive use of allergy medicine could have brought on the BFS symptoms.

Ain't this one weird malady?

-- Cliff
 
It is a fact that the myelin sheath repairs itself during sleep (also nerves, muscles, etc). We all know natural sleep (without the use of aids, etc., is the best)

What I thought was interesting was that someone pointed out that Benedryl (which contains a sleep aid) may cause twitching. I also have to say that it wasn't long after I began taking Ambien (another "artificial" sleep aid) I began twitching. If you read some of the neuro's replies from the Cleveland Clinic Neuro Forum, lack of sleep can cause muscle twitching.

There seems, to me, to be a definite correlation between sleep (or lack thereof) and twitches.

Ginny
 
I definitely get the sleep problems as you describe. As for noise; before the twitching started, I woke up one morning feeling extremely dizzy with loud ringing in my ears. I was told initially that it was labarythitis, but it became evident that this was not the case as the symptoms continued for the next year or so. Then the twitching started in the calves. The twitching, ringing in the ears and occasional dizziness continues to this day. Don't know of the insomnia, ear ringing is connected to the BFS, but I wouldn't be surprised.
 
Ginny...
Interesting about your experience with Ambien. I too started using Ambien nightly for about 3 months before my twitching started. And now my insomnia is even worse than before so I am still using it. I've often wondered if that had something to do with this but I don't think we will ever know for sure. I think there are different precursors for everyone on here...some similar, some different. But it does seem like almost everyone was on or had taken some type of med before this started. I was also on Wellbutrin when this started and I have read all the posts about ssri/snri's aggravating or causing the twitches to start.

Alli
 
I too had sinus issues prior to and during my worst times with BFS. It was found that I had a chronic low-grade infection (no fever and no runny nose) that was treatable with antibiotics.

I also noticed that disturbed sleep made the twitches worse. (I was having a lot of it). Disturbed sleep and insomnia are also common with anxiety, which ALL of my docs attributed as the cause of my twitching. So many things can cause anxiety and/or sleep disturbances....and I think this is a good train of thought.

Sometimes we get caught up in trying to find the 'one' cause and hence the 'one' cure for BFS....and we lose sight that there can be a whole variety of factors, different for each of us, which is causing these strange symptoms. It's really interesting to see how a virus, infection, stress, anxiety and drugs can all (in their own way) contribute to bodily stress, anxiety and insomnia---and possibly trigger BFS. Who knows??? :rolleyes:

Amy
 
Very interesting topic. I suffered from the no sleep at night and before I started twitching I was taking all sorts of meds for this terrible illness prior to BFS - antibiotics and Zyrtec, allegra and benadryl (not totally all at once) I'm a junkie when I'm not feeling well :). My funky arm pain started. Then I got poison ivy and took benadryl. Twitches began.

Who knows if there is a correlation but I think that allergy meds definately contribute to twitching. You'll all think I'm off my rocker now when I tell you why. Don't laugh - but my cat suffers from OCD, anxiety and allergies where she licks her hair so much that she becomes bald on her stomach. She takes elavil (which is also used for allergies) and benadryl and she twitches like crazy. I asked her vet about this and one of the side effects is twitching. It's very sad because she doesn't have a website she can go to for support. :rolleyes:

felicia
 
Felicia,

I'm not laughing, honest.

My German Shepard has OCD, too. He takes something called clamocam (sp?) He gets terrified of certain noises. Actually, it's more of an anxiety disorder.

Thankfully, the rest of my menagerie (cats, horses and chickens!) seem normal :D)

Ginny
 
Alli,

I still take it too, although I take 1/2 of a 10 mg. tablet.

I tried going off, and I had the worse insomnia too. My husband is totally convinced it has contributed to my twitching problem.

Ginny
 
My German Shepard doesn't like certain noises either! He particularly hates the answerphone and howls when it is on. Is this a GSD thing? He isn't on any medication for it though, we just ignore him when he is on one of his barking episodes!
 
Diego4Life,

I have admired your previous posts for their clarity and intelligence but you are way off base with this one. Elvis lives in the catacombs underneath the Vatican with Howard Hughes, Jimmy Hoffa, and Pope John Paul II (Yes Pope John Paul is still alive and still controlling things in Vatican City.) This news was divulged by a member of the Swiss Guard who undercovered a plot from this dastardly quartet to kidnap George Bush Jr. and convert him to Catholicism. The Swiss Guard was later found dead having, apparently, choked on his own panty hose.

sincerely,
Basso
 
LOL!!! about Elvis!!! We do need the humor!!

Gary,
I think the antibiotic was the amicrobin - sounds very familiar. But I'm not sure, I don't take antibiotics often and when I do I usually am prescribed cipro or a z-pack. I'm going to check with my pharmacy.

Ginny, You have really neat animals!!! My dog growing up was a Emilyomouse shepard so I absolutely love those dogs! Do you give your dog the meds daily? I find that daily doseage makes my poor cat so loopy? My other cat Gizmo has a noise anxiety where he actually shakes. Actually he's scared of everything even his own shadow (we adopted him because no one else would and he probably didn't have a good start). I don't medicate him unless I have alot of people over or on holidays with fireworks going on all weekend. My poor kitties!!!

About the lack of sleep. I went out for my friends 30th birthday last night. And overdid it just a bit. I'm on a few hours of sleep and today I'm twithing like nutso, my ears are ringing and my head is buzzing. But last night there were no twitches. I find myself drinking alot more? Socially - but more than I usually did. It's just so nice to have no twitches if even for a few hours! I also find that I don't notice my twitches while shopping.
 
Felicia,

Cipro could be the cause of your problems. Here are a few links to sites that deal with adverse drug reactions to cipro. I believe that my problems are a direct result of cipro.




And here is a thread from the BFS site:


I would recommend that you take a few minutes and visit these sites. It could make some sense about what is happening to your body, it did for me.

Take care,

Gary
 

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