Inactive Support Group & Questions

[journeyer80]

It seems like this support group has really died down a lot since I was first a member here nobody replies to anybody's messages hardly at all or anything like they used to maybe I am wrong but it just seems that way to me i have asked over and over about this cramp thing that I've been having and nobody has really replied to me yeah maybe I am really freaked out but I do need reassurance from the support group hence the word support so again I've had a cramp in my calf that won't go away for the last week and a bunch of twitches how about you guys what is your experience with cramps

 

[twinTwosome]

I've been lurking around a lot lately, but rarely post anymore. I have been thinking about BFS a little too much. My health anxiety in creeping back up on me. Maybe I will post about it later. Anyway, as far as cramps go, I am more the "kinda feels like it might cramp up" type. I get that feeling in the arches of my feet, calves, and hamstrings most often. The feeling usually is accompanied by an increase in twitching. I hate it, but since it has happened so frequently over the last 2 years, the fear is (mostly) gone. I think you can rest assured that your symptom is very common, nothing out of the ordinary for BFS. Becky

 

[mymy16]

I have never had a true cramp. I have the tightness and stiffness in the calves. Your neuro didn't seem to be worried. She saw no weakness. I really hope your appointment on the 8th will finally put your mind at ease. Hang in there!Shelly

 

[BarbiePetals]

That is because alot of the oldtimers have left the board for whatever reason like Mario and Basso. I agree it's not what it used to be.

 

[bfhopeful2]

although I never cramped, unless exercising I don't know, but I do know it's a common complaint that I've seen over and over again the last few years with bfs sufferers. It does make sense to me though. If ur tense from anxiety it's bound to happen.

 

[AussieSurvivor]

Hi Brian, sorry buddy. I dont post as much as I used to. Just get so busy. And yes old timers have moved on, the nature of this site I guess. Just up to us newbies to continue!( you hear me guys!). Robynn, Mario, Basso,Darr( to name a few)-all big losses in that respect.In regards to your cramps. I get a general tightness in the calvess that can last for days. And also as Becky mentioned 'precramps', which dont become full blown. I will cramp big time when I stretch sometimes. Also after sport I sometimes cramp big time. Wouldn't worry to much, sound pretty normal for BFS. They will go in time. keep the chin up!cheersRodger

 

[SparkySunshine97]

Hi tripper,Sorry mate, it's difficult to get the balance right on this board between supporting people and obsessing over our conditions. My calfs hurt like hell at the moment and physio deep massage is agony, but unfortunately I can't offer advice on cramping as I don't get any. But there are a lot of people who do.Good luck buddy.

 

[edadoStar]

I do have cramp to my feet, but not only. Not every day, but sometime even on daily basis.

 

[Outlook1958]

I had three or four cramps during the last two years, especially during the hot summer time. I guess that's because of the sweating, drinking too much beer during the soccer championship and the resulting lack of electrolytes. Cramps and twitches do not HAVE to be related by the way, these can be completely independent issues. I can recommend three things that might signifcantly reduce the cramps:1. Drink a lot of mineral water, especially if it's hot outside. I guess three liters per day should be okay.2. Avoid drinking greater amounts of alcohol. This only makes you go to the outhouse to often and that draines electrolytes from your body - and that will most probably cause stuff like cramps or heart arrythmia.3. Try taking Magnesium pills... Here in Germany we have 400mg pills over the counter, I guess that shouldn't be a problem in the US too. Take a pill per day after breakfast for a month or so and just let us know if it helped. If you're unsure about the pills or possible side effects (e.g. if you have certain specific problems with your liver or kidneys), ask your doctor first.

 

[GlitterFountain]

I used to follow the Issac's syndrome/Cramp Fasiculation board, but don't anymore because I didn't relate to the cramping. However, it might be just the ticket for you. I still sometimes drop in because a neurologist noted "myokymia" in me and there are good medical journal articles posted there. One person there was recently diagnosed with a sodium myotonia disorder after 12 years of searching. I know her primary complaint was muscle pain. See: Also, google "Surviving Neurological Limbo-land." I have never joined it because it focuses so much on pain management, but again, it might be worthwhile for you.Terri