PinkNinja25
Well-known member
Hi everyone,
After almost 9 years of BFS I wanted to relay a little bit of hope to some of you.
Things do get better. I hardly twitch at all anymore, no cramping at all, a few weird sensory things here and there but for the most part my BFS is limited to a yearly or every other year flare up (if that). I had my last follow-up with my neuro who still tells me BFS is some sort of calcium conduction/nerve misfiring. He is a great doc and told me once again that the cause may never be pinned down simply because it is a benign condition and in his words "there are more sinister" maladies to research in neurology. That be being said maybe this will reassure some of you. I have never used meds, supplements (he said they don't work), but some anxiety meds may take the edge off in his opinion. He did tell me once again that anxiety can definitely enhance ANY symptom for pretty much any thing the body goes through...adrenaline can do all sorts of things to make things a bit worse. But he added anxiety is not the root cause, BFS is a misfiring in a complex network of electrical neurons. Bottom line is to his knowledge, it has NEVER evolved into another medical syndrome and is not related to the pathology related to any sinister neurological disease....it's just a misfiring, somewhere along the way something got a little wacky. To be honest the more I think about the complexity of the nervous system the more I understand his diagnosis.
Hopefully, this may reassure some of you...hang in there.
Happy Holidays
Amy
After almost 9 years of BFS I wanted to relay a little bit of hope to some of you.
Things do get better. I hardly twitch at all anymore, no cramping at all, a few weird sensory things here and there but for the most part my BFS is limited to a yearly or every other year flare up (if that). I had my last follow-up with my neuro who still tells me BFS is some sort of calcium conduction/nerve misfiring. He is a great doc and told me once again that the cause may never be pinned down simply because it is a benign condition and in his words "there are more sinister" maladies to research in neurology. That be being said maybe this will reassure some of you. I have never used meds, supplements (he said they don't work), but some anxiety meds may take the edge off in his opinion. He did tell me once again that anxiety can definitely enhance ANY symptom for pretty much any thing the body goes through...adrenaline can do all sorts of things to make things a bit worse. But he added anxiety is not the root cause, BFS is a misfiring in a complex network of electrical neurons. Bottom line is to his knowledge, it has NEVER evolved into another medical syndrome and is not related to the pathology related to any sinister neurological disease....it's just a misfiring, somewhere along the way something got a little wacky. To be honest the more I think about the complexity of the nervous system the more I understand his diagnosis.Hopefully, this may reassure some of you...hang in there.
Happy Holidays
Amy
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