The post by "EyeoftheWild" is one of the reasons why I choose to correspond privately. I respect "EyeoftheWild's" right to be skeptical. He doesn't know my background. Cool. When you post in a public forum, there is often disagreements or differences of opinions for a variety of reasons. I prefer to "not" get into those kinds of situations.
My offer stands. I served on the Board of Directors for a local chapter of the ALS Association for more than three years. Each year we ran fund-raisers (such as the Walk to D' Feet ALS) to help patients with ALS in our community. I attended dozens of various fund-raisers both in my local area, and in neighboring communities. Many of the events had a dozen or more PALS in attendence. Unfortunately each year a handful would pass away, and a new handful would be diagnosed and register for our services. We provided wheelchairs, speech augmentation devices, rides to hospitals, information to caregivers, etc. We also established the first local ALS clinic in our community.
So, yes....I am not a doctor, but have seen at least one hundred ALS patients across our region of the state over the years. Most of them are the kindest, happiest people you will ever want to meet. Even down to the last few weeks. Although I am not active on the Board now, I still attend occasional fund-raisers to help with the cause.
I don't pretend to know any more than anyone else on this board, because I don't know who knows what here. I don't offer any magic bullets or solutions. The only thing I can offer is to share the story of what I went through with "twitching" (and all of the other stuff that goes with what is called BFS) over a period of many years. And I can share whatever insight I have learned from so many of the PALS and doctors that have touched my life.
Good luck to all...
My offer stands. I served on the Board of Directors for a local chapter of the ALS Association for more than three years. Each year we ran fund-raisers (such as the Walk to D' Feet ALS) to help patients with ALS in our community. I attended dozens of various fund-raisers both in my local area, and in neighboring communities. Many of the events had a dozen or more PALS in attendence. Unfortunately each year a handful would pass away, and a new handful would be diagnosed and register for our services. We provided wheelchairs, speech augmentation devices, rides to hospitals, information to caregivers, etc. We also established the first local ALS clinic in our community.
So, yes....I am not a doctor, but have seen at least one hundred ALS patients across our region of the state over the years. Most of them are the kindest, happiest people you will ever want to meet. Even down to the last few weeks. Although I am not active on the Board now, I still attend occasional fund-raisers to help with the cause.
I don't pretend to know any more than anyone else on this board, because I don't know who knows what here. I don't offer any magic bullets or solutions. The only thing I can offer is to share the story of what I went through with "twitching" (and all of the other stuff that goes with what is called BFS) over a period of many years. And I can share whatever insight I have learned from so many of the PALS and doctors that have touched my life.
Good luck to all...