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I have not had this skin biopsy but I always wondered the role that SFN has with BFS.I find the studies you shared very interesting and I will bring these to the attention of my neuro at the Mayo clinic during my follow-up exam in a couple weeks. Thanks again for the contribution.
 
Great contribution Buzznerd. I see you joined almost a year ago and this is your first post. Obviously you have done some "research" and find this important enough to share - it is not recycled news. Thank you! Interested in your other thoughts too. The association again with sodium channels comes up again.
 
I just got back from Duke University and was told I likely have small fiber neuropathy. They said I could have biopsy but it really wouldn't change anything by knowing for sure so I refused. It's a long drive for me. He did say it can get better with time. Gabapentin, diet and exercise is the treatment of choice for "mild" small fiber neuropathy. They have immune suppression drugs also but not recommended for my "mild" case.
 
Thanks so much for posting this. One of my neurologists mentioned this about two years ago, and she said that would explain why my EMGs were normal: because as you said it doesn't show up well on the EMG's. She also told me that the biopsy was maybe not worth the time/$ because what would it accomplish, she already knew that whatever I have is benign. For those on this forum wanting a definitive answer as to WHY, etc...this is a great bit of info.
 
I too find this fascinating as well and (unfortunately) sparks my interest in yet again finding a causation. Please correct me if my math is wrong but estimated 80% of BFS has SNF (say 80 out of 100). 20 left over with no causeAnd out of those 80% with SFN 30% have an unknown, idiopathic causation (80 x 0.3 = 24). 20 + 24 subjects out of a 100 or 44% of BFS dx still without causation. Mayo told me that 10% of BFS cases they can tie to an autoimmune condition and my guess that would tie directly to SFN. I also have seen numerous topics brought up on herpes and bodywide fasciculations. It is well known that the herpes virus itself can cause small fiber neuropathy. I hope this doesn't mean I have to give up my nightly wine! Great stuff here Buzznerd!
 
I am getting the small fiber skin biopsy done at Duke next month. I am having some autonomic symptoms which made my neurologist more interested in getting me tested.
 
Brainiac123, thank you very much for all the great info. I'm going to read all the links you provided, this evening after work. You know, one of the things I find interesting is thst but hg started after a strange bout of diarrhea (sorry for the tmi) that lasted from May 2014 - August 2014. Never could find a cause after many tests by a really good gastroenterologist which included a colonoscopy and endoscopy. That stops in August and Then suddenly burning starts in September. You list IBD or IBS as relation to this. Sorry I'm typing on my phone and don't remember which you listed. Very happy to see you post on this forum and I'll be reading the links tonight.
 

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