Help Needed - Chronic Illness

[inzTwoToneTunes]

Hey guys. I am kinda going thru it and need some help. coming up on 3 years of this crap. Was doing good until about 2 months ago. My jaw became extremely fatigued and painful. It was a slow burn after that. To make a long story short at this point I have moderate bodywide fatigue, twitching all over like a MACHINE. Pain, pins and needles, burning, cramping, fogginess, tinnitus, bodywide trembling, carpel tunel, etc etc etc!!!! The worst is my feet and legs. My feet and legs and lower back hurt very bad. Cannot walk for more then about 5 minuetes without having to sit down. I convinced my neuro to do another mri (normal except for minor bulges in neck and lower back) which they said is not the reason, and another ncv (my 5th) which showed carpel tunel, pinched nerves on outside of both kness. She said I have mild PN but no clue why. My feet feel swollen and hurt BAD I tried to get another emg(4th) but she refused. She did do emg in jaw only to see if nerve damage but came back ok. I am a horrible clencher. I am starting to lose it. Currently on lyrica, .05 klonopin, sleep meds and tons of IB's. She wants me to start baclofen but not until I get off of klonopin. Oh and my triclesyerites (sp) are sky high (650). I know all the right things to do and the stats but still feel like I am going down. Sorry to vent. I GUESS I AM JUST PLAIN WEARING OUT. I am fighting a cold for past two weeks and I know this can contribute.Thanks guysDD

 

[garymills]

DD,work hard on controlling the anxiety and try to get plenty of sleep. Muscle fatigue for me is way worse when I'm stressed or not well rested, and for sure when my anxiety is up because that feeds the other two.Hang in there, things will get better. You've been at this way to long for it to be anything serious.Gary

 

[occasins]

Isn't getting scared after years of thinking you've whipped it almost worse in its own way than the initial panic phase? I know I have had a huge increase in symptoms that coincided with my return to the boards here. There's a sense of shame for me on top of the anxiety, like "I can't believe I'm falling for this same crap again."On the other hand, we've developed some coping skills, haven't we? Try to remember what worked for you. Probably outlasting your initial panic phase. Surely your EMGs, which I've never had the guts to go through. (I know what would happen with me. It would be like every other thing I go to the doctor for. Nothing ever gets resolved. Maybe it is a Veterans' Administration thing.)There are times when multiple symptoms coincide. Undoubtedly sometimes it is really coincidence at work, but there is often a cascade effect from stress and the chemical hell it puts our poor bodies through.Rest is good advice, especially good sleep. Laughter is great. Doing things for other people, even if it is just noticing them. It sounds silly, but I try to acknowledge everyone I see, even in passing, with friendly eye contact, and I talk to strangers. Funny thing is, no one seems to get creeped out. I feel like the guy in 2001 when he says "It's full of stars!" Except it's the world and it's full of people, who are far more remarkable and awesome once you start seeing them.You'll get past this one. Eventually something catches up to all of us, but not yet.

 

[AllGoodHere]

DD - what is up with your diet? Guessing it must have changed or something else has kicked all this off....I mean you sound a mess, like me ...a year or so ago... Listen - try to start paying close attention to your diet and cut our the irritating stuff (additives, sugars, caffeine, anything that is aged/fermented) and see if that helps (it helped me). You're not diabetic are you? Several papers I've read advise B1 (bentfotiamine) and B6 for PN. Sorry to hear you are going through a bad spell - but you know it is most likely temporary so don't freak. If you can find one - go try some physical therapy - my favorite for jaw clenching is cranial-sacral therapy - often done by physical therapists and sometimes by chiropractors. This isn't usually advertised so you may have to do some research in your local. Good luck, hope you fell better soon, and let us know how it goes.

 

[hCapitalize]

3 years is it that long?Know the feeling, I feel I am definately wearing out, and I am not at all pleased with some things, I was actually sold on the notion that my ulnar nerve and CT problems would be solved by an operation, well I guess they are not, and I wonder whether it was even worth it. The doc essentially scared me into having the ops, but I just accept the pins and needles numbness and other stuff now.I think there is not enough research into this, I reckon it is my body type that is to blame, fast reacting muscles and hypersensitivities, coupled with a degree of hypermobility. I am just too "highly strung" to use an old phrase.I don't help matters by stressing out and neglecting a proper diet either. But Winter will soon be over, and global warming will kick in again with a beautiful warm spring and summer