Healing from Twitching: Progress Report

InkedMama

Well-known member
Hey all. As you know I've left this site a few times for 1.) Self Healing. 2.) The doctors have told me to stop obsessing, that I know all I need to know. 3.) To spend more time getting ready for the baby. Only 3 more months..well a little more. Over the past few days. The twitching has almost diminished besides the slight handful I get in my legs after being up on them a long time. I've been seeing a psychiatrist, a therapist, after I had went to a MD about my FEARS and did the clinical exam. I baught a work book called "Panic and Anxiety Phobia workbook". You can pick it up at Books A Million or order it @ Amazon.com. I highly suggest it.Anyhow- Lately this site hasn't been the same. I see all these positive POST from NEURO visits, people getting good reports , and TONS and LOADS of GREAT information. All which have been backed up by Doctors. Thanks go SeanRBlock, JoAnne, Sir_Trouserz, Nikki, StevePaul, GuitarGuy, and many more I just cant recall...but to me it seems those post of great information are just getting looked over and NO REPLIES to. I can't understand that. I read those post and I feel like Mountains get lifted each time. Seems w/ anxiety people just want to gun it straight to the NEGATIVE and "WHAT IF" posts. I did that at the beginning, but have come to learn that I can sit here ALL DAY long and wait for each new post but its never going to change ANYTHING. I've seen 3 doctors and all say I Am fine and all of them have said what I have read from other neuro's on here etc. Its not a conspiracy you guys...The people know what they are talking about. I've come to the point that I know all I need to know about this BFS. I dont CARE what causes it, All I care is that its BENIGN and it won't progress to anything sinister. If I get something when I am older then so be it, we all have to give in some time. There are numerous things to be concerned about that are more logical right now- but I dont sit infront of those websites and cry like I used to this one and the "other" forum.Anyhoo, I just feel like I can't help any body on this forum anymore because it seems that only people care about are the "what ifs" and "could it be's"..not the "WHAT ITS NOT" and "What if I am the 1 in 100,000 extreme RARER than RARE exception". I am sorry If I am sounding a little harsh. I do not mean it by no means. This site has been great help. I guess a lot of people tend to get good dx and move on. Which is awesome. I wanted to stick around and help...but as I see it just doesnt work. Maybe I dont say the right things..I tend to be postive now. I know I am fine. I know WE ARE ALL FINE..We just HAVE TO LET GO of ANXIETY and TRUST OUR DOCTORS. Its NOT A CONSPIRACY my lovelies. I promise you.Good luck to all, but its now time I permanently pack my bags!!!! God Bless. Lovely
 
Best of luck Dee Dee! Take good care of yourself and your baby. It sounds like you have a really good handle on all of this now and are ready to move forward and be happy. That's really wonderful!!! :D) Best Wishes Always,Sir_Trouserz
 
bye Dee i hope your pregnancy goes great for you, as Sir_Trouserz implies, its a very healthy sign you're ready to move on with thingstake care, stay happyRich
 
I also echo the sentiments of the others when I say congrats and good luck! It definitely is a GREAT thing that you feel ready to move on! I don't know if you will be coming back to read the replies, BUT here comes the BUT....... just like our familes, and other people who dont' have this don't understand what we are going through, it's the same thing when someone is feeling better, it's like right away, there is a level of not understanding what other people are going through. You are expressing alot of frustration towards those who are not yet as far as you are with this, but that is exactly the point of these boards! If we were all feeling great, we wouldn't need to come on here at all. I have been on here countless times in a complete panic, and really don't know what I would have done without the patient, wonderful people on here. I hope, that when I'm feeling better someday, I have the compassion and patience that they did towards me. It always would amaze me how someone would take the time to write me back just to make me feel better, and it didn't benefit them at all. It's really completely selfless. I think part of the reason you might be feeling frustration is that you need to do that to break away. This board can maybe tie some people down, and they have to cut it off completely to feel like that can cure themselves. I completely understand that, I think that's totally normal, especially for a syndrome such as this that has a lot of anxiety, panic, and overwhelming feelings of dread associated with it. Believe me, I think there are more than a few times people must have gotten frustrated with me, because I would ask something, feel better because of some responses, and not too long later, ask another similar thing! An example would be the tongue twitching. I would feel better, but then when I would have another episode of it, here I would be, asking for more reassurance!! But, again, that is how the BFS thing works. Time will eventually heal everyone here, but it takes just that, time. And, patience. Because, I know, and I notice this with others, that you need reassurance over and over again. And. even though I might have come on here asking something again and again, that time that I did get that reassurance helped dramatically for that time period with my family. So, don't assume that you haven't helped someone because they come back on being negative again~~it's just the roller coaster nature of this. That one time of reassurance helps beyond belief. There have been times, for me, that I was literally able to be a different person because of the reassurance I would get on here. I can remember specific instances, such as when we were going to a play, and I was feeling lousy, got on here, and it got me through the night! I will be forever grateful for that. Again, good luck to you and congrats for moving on! It's really a great thing! There are only some people who can keep coming on here and helping others without feeling like they will go downhill themselves, and I don't know if I can be in that group either. It's a tough thing, and I understand how hard it can be. I can go back to some old posts of mine, and the feelings start coming right back. Anyway, good luck, and concentrate on that baby! Val
 

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