Head Shaking Waking Me Up

[Haileyside]

Hi.Has I said elsewhere, I'm feeling some head shaking (a kind of tremor or vibration) during the night, which wakes me up. As I also said, my neuro (in fact, my two neuros) say there's nothing to worry about, that should be hyper-excited nerves because of my birth, which are showing off now as a result of some triggering.I also read on several posts that there are many members who also feel the night head tremor and some other movements, like daily tremor and myoclonic jerks. So I'm not alone, I probably have just BFS, whatever the cause is.However, I'm not sure of what I feel exactly - and, with that, I'm not always sure about if I should be concerned or not.What I feel is (along with the twitches, which I learned to live with):- a vibration on my head (since five weeks, maybe), which sometimes seems to spread slightly to neck, trunk and arms; it lasts for some 30 seconds to 2 or 3 minutes, and it wakes me up (or it begins immediately when I wake up), and sometimes when I'm falling asleep; It happens three over four nights; I hope it's just BFS-related, not something like epilepsy- during the day, very slight movements of the head (of "yes" and "no" patterns), which I feel one can see very well when paying attention (my wife and one doctor have seen it); this is not new, but is becoming really boring and frequent, especially because I also have- very slight movements on the arms (especially on the left one) and hands (sometimes on legs), especially on rest but with a bit of tension; I can't say if this is tremor or myoclonus; this, along with the head movements, is what concerns me the most. It's very frequent, almost permanent, and it gives me a feeling of unstableness. I don't feel it so much when I make something, but much more when I'm resting or trying to relax.I also feel some kind of numbness on the teeth.The fact is that's not typical from traditional kinds of epilpepsy, nor Parkinson's, nor MS (well, maybe MS, since its symptoms may appear slowly, one by one, like this). If it was a brain tumor, it should already affect other things. Yeah, ok, just BFS, just hyper-excited nerves. Is it?Please help me to be reassured (or to run to the hospital!).Once more.CarlosP.S.: Couldn't we invite some of our neuros to join the board? They should be helpful.

 

[EyeoftheWild]

I doubt you are that interested in listening, but you are fine and have bfs. In my opinion you should forget words like myclonus, tremor, and all the other words that we think we know about. You are stressed out and so your body moves. I used to get movement of my arms in the beginning, it isn't a big deal and it goes away. You've been to the doctor, you've got the all clear, so what else is there for you do? Every time you feel bizarre..go for a walk, and don't think about anything. There is no peace to be found on this board. There are just many others like you who feed the frenzy of pseudo-illness. We have a condition, it has a dumb little acronym BFS, and that's the end of the story. I wish there were something more exotic to it, but after many years of having the condition I can tell you there isn't. Everyone here represents someone else that was here and asking the same questions. I wish you all the best.Basso

 

[simonw00]

I would share Basso's words of reassurance. Nothing about what you've described sounds worrying or out of the ordinary, compared with many of us who have or have had BFS.Basso - as an aisde, I note that you joined the site in 2005... out of interest, do you still have fascics, or did they settle eventually? Just curious. RegardsSimon

 

[EyeoftheWild]

Not to high-jack Carlos' thread, although he seems to have disappeared, yes, I still have fascics. I occasionally feel internal tremoring and a few other small things. However, the cramping is gone, the burning sensation (which was for me the worst of it), and the fatigue is gone. I feel great. I rarely think about my twitching, except when I bother to come to this site; in which case they become worse. Somehow, consorting with other bfsers brings the twitches out; such is how the brain is wired. Over time, bfs lessens into a non-event, particularly if one uses it as a catalyst to explore ones life. By that I mean, delving into those parts that we intuitively know are there, and allowing ourselves to experience life in a new way. The fact is there are many people who twitch but don't worry about it in any way, shape, or form. I've always found it interesting that mostly this site is comprised of middle-aged, white, middle-class, people, who obviously have enough time on their hands to scurry around the Internet regularly; I include myself in this group, as well. There is enormous stress inherent in the way we lead our lives in this Western world, I include Europe, because we all have what we need materially, but have very little of what we need spiritually. Isn't it interesting that when the economic crisis hit the governments fell over themselves telling us we needed to "spend" our way out of the recession? No one in government or in the media gave even a smidgen of thought that perhaps it was time to reevaluate how we lead our lives, or if now might be the time to "spend"time on our spiritual/psychological selves; rather than buying more shyt that we don't need. Bfs, as we identify it, and a host of other non-specific chronic ailments, are symptoms of how we live. The beautiful thing is, if we listen, if we pay attention to this phenomenon that is taking place inside our bodies, we can find a more affirmative way to live. A way that says "Hey, what a great life this is." The point is: don't pay attention to the fascics; they aren't the problem. Get off the anti-depressents, the anxiety meds, the worry train, and start living. Waiting isn't an option, just look at the second hand of any clock. You know the expression "when the going gets tough, the tough sling jello." Do an action, make a commitment to doing something, even if it's a walk around the block. Feeding the "freaking" frenzy means instead of walking forward, we are sliding backwards. Sliding backwards means we are following our butts, and who among truly wants to follow their own butt? ) Basso

 

[simonw00]

Apologies Carlos for hijacking your post, and thanks Basso for an inspirational contribution. As you know I wear my heart on my sleeve and have been very open about how stupidly anxious I have been about BFS in the past. But the pertinence of your comments have been dawning on me these past few weeks and I completely share your view on this. Well put!RegardsSimon

 

[EyeoftheWild]

Peace, Carlos. I misjudged the tone of your query. Hey, at least you now have a few responses on your thread. Your post was sitting there for at least two days until I answered it. ) Basso

 

[Krackersones]

Carlos,I share your point of view about wanting to understand what is going on with your body doesn't necessarily mean you are not otherwise leading a quality life. Of course, there are some here that obsess beyond what is even conceivably necessary and those people probably have no signficant symptoms. Your symptoms like mine sound very real and if I understand your experience they are a bit perplexing like mine to the neuros even though they seem confident it is not the known bad stuff. I have many of the same symptoms as you and they came along suddenly with the twitching. I have also been told that it is all hyperactive nerves. The nerves do control our bodies so if there is something a bit off with them they can cause all sorts of strange phenomenon even if it is not ever going to be disabling. I think the best part of this board is simply knowing we are not alone. Many neuros and other doctors have sometimes made me feel like my symptoms are more rare than they really are. This board also helps us know if we are doing the right things to find out what may be causing our symptoms or what we might do to relieve them if we need to without seeing every neuro in the world. We basically get to benefit from the neuro visits of others and through those reports we can make our own visits more productive and be reassured that we are getting the standard of care.I hope things get better for you symptoms wise.Krackersones

 

[LivelyCheer]

Take my word for it....Listen to Basso. When I was going through my worst... Basso was and still is the person with the best handle on all this.After saying that.... you have a real problem but it only gets worse when you think about it, google it, talk about it, etc. I have the tremors, vibrations, twicthces and all that. It gets much worse when I stress over it... which is not very often any more. You do not have a major disease, only an inconvenience. I still coach soccer, two teams a season and run with the kids on the field. 3 years ago, when my mind told me I was sick, I could hardly stand through a practice. Yes you have twiches and possible tremor, but you fine otherwise. There are several MD's on this site with BFS, including me.Listen to Basso.... his advice is better than you will get from your doctor.Peace... Chip

 

[TatsuDragon15]

I had something similar like you a few years ago with the neck buzzing or feeling weird/weak. They did xrays and found my neck muscle to be very tight. Also I overextendend my neck muscles sometimes. I started to do neck exercises and it helped me a great deal and I hardly get them anymore. I also learned to use better posture. this link shows how you can exercise your neck if you're interested : When I started doing it, my sypmtoms didn't get better right away. I remember it taking some time until the buzzing went away.