Millenniumy
New member
Hi to everyone here,I used to visit the site years ago [I am an old timer]. My twitching started nearly 7 years ago after my 1st child was born. I spent the first couple of years on this site a lot, looking for support and to ease my worry. I had been to countless neurologists over these years, MRI's, EMG's, with no muscle weakness then on any of my neuro exams. I was told I had BFS. My symptoms would come and go. I'd get a flare-up that could last for weeks or months, but then it would go away or be so minimal that it never really bothered me at times. I learned to live with it, and definitely not worry about it.My latest situation has me worried again, however. I may have a combination of things going on, but there is more than just the normal twitches [which I also have again]. About 3 months ago, I developed a twitch in my left eye, that then was followed by my right eye. I twitched in those eyes for 2.5 months. Left eye was every day, almost all day long, and right eye was more intermittent and some days did not even bother me. At about that time, I started feeling some deep pressure in my head, almost like it was behind my sinuses. At that time also, my top teeth went numb, and still are. I went to an ENT doctor re: my sinuses -- he put me on meds and did a sinus CT scan, which was normal. Nothing changed. In fact, things got worse. Finally the eye twitching got better after 2.5 months, but now I have facial twitching on the right side of my cheek, and some numbness on the right side of my mouth, including right side of my tongue and going across to my ear. It's not totally numb; feels like I had a novocaine shot that is wearing off. This has been for about 2 weeks.I went to see my dentist about the numb teeth and he said my teeth were okay and that I should see a neurologist. So here I went back again to my neurologist, who was a little concerned about the numbness on the right side of my face. He said that sounded neurological. In the meantime, my arms had started twitching a lot in the last few weeks, which wasn't concerning me -- I just thought it was BFS again, probably as a result of the stress I was having with my head and face issues. He's ordered some MRI's and bloodwork, and did another neuro exam. To my amazement, I had some weakness on the right side of my body. My shoulder/deltoid muscle was weak, as well as my hip/upper part of my right leg. He tried many times in these spots and the more times I couldn't resist his strength, the more panicked I felt.I left his office in an absolute fog, worried and scared about what was happening. I've had BFS for so many years and had come to accept it and not be afraid anymore. Then something new happens -- and granted, there is more going on than just twitching this time, but I am so confused and just hoping that all of this will amount to nothing and just go away. The most frightening part of this to me is that I had actual muscle weakness. I have had so many neuro visits in the last 7 years with my BFS symptoms and have probably seen at least ten different neurologists in those years, and I never had any weakness on any of the exams. I was shocked, and so was the doctor. He did not expect it, either. Now the twitches are scary, and every weird thing that is going on is much more frightening than before. I have stayed away from researching ALS or MS since all of this has happened last week. I'm starting tests tomorrow and just hoping for the best -- that whatever this is, will resolve or can be treated.Thanks out there for reading. Not sure where to turn right now. I have BFS but something else is going on right now, too. I wish it was just the simple days of twitching with no muscle weakness. As much as I worried back in those early days, I would give anything to just be in that boat right now. Kate