GP Appointment for Migraines & Dizziness

[santos271]

I posted "my story" earlier, and in it I mentioned that I saw my GP last Monday. I had made the appt with her quite a while ago, originally for the opthalmic migraines I'd had last fall and the dizziness I'd been experiencing lately. (As I said in my first post, it was in researching these on the web that I came across the *** sites and my twitches that I'd had forever exploded into allover, near-contant twitches).Anyway, she gave me a basic neuro exam - you know, squeeze, touch this, tap here, look here, reflexes, etc - and said that I was fine. However, she also said that she has "almost no concern" about ***. ("Almost" being the problem word.) While she said that all my symptoms are likely benign in nature - the dizziness is vertigo I was diagnosed with a long time ago, the tingling/numbness is nerve compression in my shoulder and elbow - she said something else which is keeping me up nights. She said that while I look good now, it's always possible this is something (***) in the early stages and that if it gets worse or persists she'll send me to a neuro. She also said that of course there is no treatment for *** but that "it's good to know so you can plan." I DID NOT NEED TO HEAR THAT.I would love to have a neuro tell me that I'm fine, that I don't have ***, but honestly, I'm afraid to go. I couldn't bear it if I was told that I had it - I don't think I could manage day-to-day with that hanging over me. At least now I have the hope that it isn't, whereas if I got bad news, I wouldn't even have that.What she said scares me, and even though I know dizziness and tingling/numbess are not part of ***, her words are staying with me and I am afraid I'm the early stages with the other non-***-related symptoms being something else that I have in addition.Anyway, I know I sound like a bit of a nut, but these are the things that scare the ^%$& out of me and keep me up nights, and it's what's keeping me up now.Any reassurance anyone can offer would be most appreciated - unfortunately I don't want to hear that I have to see a neuro before I can feel better. Thanks,Joanne

 

[jonny1johnny2]

im in a similar boat and new but what i can tell you is this- the twitches are all over the body firstly-thats the norm for BFS and there is no weakness in any part of you and reflexes are normal-thats NOT ***

 

[santos271]

Thank you. I started absolutely losing it last night b/c I think my tongue started twitching. I've always had twitching - never had the tongue involved though. I didn't sleep a wink until after 4:30 am. Now I'm worried that my tongue feels a little heavy or something - I don't know. I'm shaking as I'm typing so it could easily be anxiety. I wish my GP had been more reassuring - I guess she was as reassuring as she felt she could be. Still very scared. Trying to get over it.Thank you for your reply.