GOOGLERS and Neuro Recounts

[GizmoTechHQ]

Thanks for that post about the neuro visit June. I am always very interested in neuro "recounts", because it prooves a very important ascpect about *** which is, without clinical weakness, muscle twitches are extremely likely to be benign in most cases. Your doctor obviously reacted professionally, but in his mind, I am sure that he was like, "Another GOOGLER!!", lol. I imagine back in the early 1990's and the past, the neuro almost saw nobody coming in about some muscle twitches! Now everyone and their grandma that gets common twitches comes in and says, "CHECK ME NOW!! GET ME UP ON THAT EMG MACHINE AND LETS SEE WHAT IS WHAT! NOW!", LOL. Back then people might have had less stress, because of what they did not know (AND DID NOT HAVE), really could not mess with their minds.

As Spiderman says, "WITH GREAT POWER COMES GREAT RESPONSIBILITY!". Hence, we must not jump to delusions of grandure over what we find on the Internet.

Thanks again for the post, and welcome. I have been a twitcher for 8 weeks now.

- Veritech

 

[Summerlicious]

Veritech...absolutely.

I've thought about it, and I KNOW I've had various twitches on and off for years, but the little ones that go "twitch, twitch" and then they stop. Of course, because they stopped I never googled, so I never even gave them a second thought. In fact, I always used to think it was a blood vessel just having a spasm. But when the one in my thigh stayed, ohhh I just had to google, didn't I.

Yes, the neuro was great. It was like right as I was saying "well, I googled and..." he started shaking his head, knowing what I was going to say.

He said he's had others with BFS. I asked, did they come in all freaked out about ALS, and he said "Oh, yeah!" He went on to stress again that it's WEAKNESS they look for. I asked if he had ever had ALS patients and he said 2. I asked what they presented with and he said one man came in because he couldn't hold things anymore...kept dropping things. A woman came in because she could not get up stairs. Nothing. Couldn't make her legs go up. Again, proves it's weakness.

He was wonderful. I told him "I'm never googling again" and he started chuckling.

 

[GizmoTechHQ]

Thanks again June.

Presonally, I have been twitching 9 weeks now. I am just now getting around to thinking this is probably not ***, I have begun to calm down a bit. I acutally had a pretty good day today, but some days seem more down than others.

If it is something benign, I can certainly live with it, although it can be a bit distracting at sometimes. I imagine after 7 months you are probably very used to it by now. The twitches that bother me the most are the ones that make my finger or toes move. Just seems wierd You ever get those?

Take care now,

V

 

[Summerlicious]

dakwilk, mine wasn't the classic bullseye, either. It was more oblong/oval shaped. I didn't really notice a center, but the GP said "oh, yeah, here it is. Well, it was all the way off to the side, and it wasn't really much lighter in color than the rest. It was very red and puffy/doughy. It gradually got bigger (probably about 2 inches long). It's still there, but much lighter.

I was just in the dermatologists office (for plantars wart) and happened to pick up a brochure. On the cover it said "Which one of these is a Lyme Disease Rash" and there were all different types of rashes. The answer was: "all of them." They can be very different. You could google "lyme disease rashes" (click on images) and that could give you a better idea of the various rashes out there.

The tests can give false negatives. I'm going to be talking on the phone within the next couple days to a lyme expert doc in connecticut. If I have any new info, I'll post it.

If you have Lyme, your twitches could definitely be due to that.

 

[Gadwilk]

Thanks for the info. I have tried to find pic of rashes on the internet and have only found one or two. I'll have to look around some more. How can one talk to the Lyme expert?

 

[Summerlicious]

Oh, the lyme expert doc is a doc my FIL (who also has Lyme, as does my MIL, SIL, BIL...just about everyone in my husband's family) has seen. My FIL is a retired surgeon, so this lyme doc is talking to me as a professional courtesy to my FIL.

I'm sure there are other docs out there. I would say most GPs in Connecticut and New Jersey (that's were I am) are very good at Lyme, because those are the top two states for Lyme.