angusglover
Well-known member
Some time ago, I went to the doctor for blood tests etc and it turned out that my Bilirubin level was high. My doctor mentioned that this was what he called Gilbert's Syndrome and that no treatment was necessary and that I would have no issues with it. On initial investigations, he was correct, but I have recently found this online which kind of contradicts him but also explains a LOT of my symptoms!!! I have underlined my symptoms.....Gilbert's Syndrome SymptomsFollowing are the symptoms described by 286 people with Gilbert's Syndrome. You will see common themes running through them all; things which appear so frequently as to indicate a direct relation to GS. There are also some symptoms which show up rarely, which are probably unrelated to GIlbert's Syndrome.You can also see the results from The Survey. As more people fill out the survey, this will provide even stronger evidence as to what can be attributed to Gilbert's Syndrome (as well as to what degree) and what is common across the population. You can help by filling out the survey.Note that these were not all exhaustive lists of symptoms. Some people were replying to a topic about a specific symptom. Jaundice is turning yellow. The whites of people's eyes will turn yellow before their skin does. loss of appetite refers only to lack of appetite. loss of appetite nervosa is the psychological problem with eating. IBS stands for Irritable Bowel Syndrome, which is a catch-all diagnosis for people with digestive problems when nothing shows up on tests. CFS stands for Chronic Fatigue Syndrome, and is also known as ME. It's a catch-all diagnoses for people suffering severe fatigue and energy problems when nothing shows up on tests.Most Commonly Reported SymptomsFrom the following, here are the most common symptoms:Frequently Reported: fatigue, tiredness, brain fog, headaches, poor memory, dizziness, depression, irritability, anxiety, nausea, loss of appetite, irritable bowel syndrome (IBS), stomach pain & cramping, liver/gallbladder pain, abdominal pain, tremors, itchiness, jaundiceCommonly Reported: insomnia, difficulty concentrating, panic attacks, hypoglycemic reaction to foods, intolerance to carbs, food intolerances, alcohol intolerance, loose stools / diarrhea, abdominal bloating or swelling, breathlessness or labored breathing, heart palpitations, aching muscles / body ache, joint pain, numbness & tingling, weakness, chemical sensitivity, weight loss, lump in the throat, feeling constantly sickSometimes Reported: difficulty finding the right words, feeling drunk, vomiting, intolerance to fatty foods, strong hangovers, acid reflux, excessive thirst, chest pain, muscle twitches, cold hands and feet, environmental allergies, swollen lymph nodes, toxic feeling, bitter or metallic taste in the mouth, eye painOccasionally Reported: waking panic attack, mood swings, feeling antisocial, intolerance to drugs, constipation, pale stools, indigestion, back pain, dry skin, feeling cold, low body temperature, pale skin, low weight, night sweats, excessive sweating, poor immune system, sore or dry throat, light sensitivity, bloodshot eyesAs you can see, that is quite a lot of symptoms to be suffering. I already know I suffer from this syndrome so I am wondering if my doctor will look into this. I am a bit worried that if I go to him with htis, he will think I am some kind of net surfing hypochondriac!!!!Anyone else have high bilirubin?
