Full Spine MRI Appointment: Experience?
- Thread starter Jackie
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The question really is, what haven't I had done, lol...
I've had all the blood work to rule out lupus, auto-immune disease, Hughes syndrome, etc. I've been to two ms specialists, 3 neuros, 1 rheumie, 1 reproductive endocrinologist, an infectious disease specialist, opthamologist a witch doctor homeopath, and a llmd who was a total quack (but a really sweet person) and my regular pcp. Oh, and years ago I also saw an ent when I was feeling dizzy. He stuck a tube down my throat, and no that wasn't fun.
I've been spinal tapped, (it wasn't terrible) mri'ed 3 times, biopsied, urine sampled, sauteed, deep fried (just teasing...) I've done visual and somatosensory evoked potentials, had eye exams for ms twice (hate the dilation part, ugh) hmmmm...geez does that sound thorough enough? My list of dx were ms, fibromyalgia, idiopathic edema, anxiety, and multiple post viral syndromes. ( I tested positive for lots of viruses.) Oh, and lyme by the supposed llmd (even though my igenex blood work was negative,) and the witch doctor also treated me for lyme and supposed hepatitis, (he diagnosed me with a machine that looked like something Dr. McCoy from Star Trek would use...) Not one medical doctor, save my pcp has diagnosed me with bfs.
My symptoms have improved almost 100%. The only time when I ever notice anything is once in a (very rare) while I will have a twitch or a tremor or occasionally if I find myself anxious about something unrelated to my health. I don't even pay attention to it, it is so yesterday. My life is so freaking beautiful, and yours will be too!
Hope this helps. I've now exhausted myself and I think I need to go back to bed, lol.
Don't worry about the spinal tap. Just make sure you lie flat afterwards to avoid getting a spinal headache. You'll do just fine. Why does your doc want to tap you?
Blessings and hugs...
Sue
I've had all the blood work to rule out lupus, auto-immune disease, Hughes syndrome, etc. I've been to two ms specialists, 3 neuros, 1 rheumie, 1 reproductive endocrinologist, an infectious disease specialist, opthamologist a witch doctor homeopath, and a llmd who was a total quack (but a really sweet person) and my regular pcp. Oh, and years ago I also saw an ent when I was feeling dizzy. He stuck a tube down my throat, and no that wasn't fun.
I've been spinal tapped, (it wasn't terrible) mri'ed 3 times, biopsied, urine sampled, sauteed, deep fried (just teasing...) I've done visual and somatosensory evoked potentials, had eye exams for ms twice (hate the dilation part, ugh) hmmmm...geez does that sound thorough enough? My list of dx were ms, fibromyalgia, idiopathic edema, anxiety, and multiple post viral syndromes. ( I tested positive for lots of viruses.) Oh, and lyme by the supposed llmd (even though my igenex blood work was negative,) and the witch doctor also treated me for lyme and supposed hepatitis, (he diagnosed me with a machine that looked like something Dr. McCoy from Star Trek would use...) Not one medical doctor, save my pcp has diagnosed me with bfs.
My symptoms have improved almost 100%. The only time when I ever notice anything is once in a (very rare) while I will have a twitch or a tremor or occasionally if I find myself anxious about something unrelated to my health. I don't even pay attention to it, it is so yesterday. My life is so freaking beautiful, and yours will be too!
Hope this helps. I've now exhausted myself and I think I need to go back to bed, lol.
Don't worry about the spinal tap. Just make sure you lie flat afterwards to avoid getting a spinal headache. You'll do just fine. Why does your doc want to tap you?
Blessings and hugs...
Sue
Sue....how can I thank you enough? You are such a nice an hepfull person, and now I am repsonsible for you beeing exhausted for the rest of the day.hmmmm :crying:
It is so reassurring to hear about your symptoms getting better, I am so happy for you after all that you have been through!
My docs want "tap" me to look for an autoimmune desease of some kind....where you positive for autoimmune antibodies?? Or any other positive blood tests etc?
1000 hugs your way
Joanna
It is so reassurring to hear about your symptoms getting better, I am so happy for you after all that you have been through!
My docs want "tap" me to look for an autoimmune desease of some kind....where you positive for autoimmune antibodies?? Or any other positive blood tests etc?
1000 hugs your way
Joanna
Hi Joanna,
I was just teasing about the exhausted part, not to worry.
No, none of my auto-immune stuff ever came back positive. I am utterly boring in all of my normalcy, lol. Not one stray molecule in my entire body, only perfect homeostasis. Even my cholesterol is perfect. I would do Martha Stewart proud.
This was why I was so crazed because no one could ever find anything askew, so therefore it was determined that I was simply another hysterical woman with nothing better to do with her time and money but go to doctors and have needles inserted into her body, lol. (Oh, I forgot to mention the catheterization I endured at the urologist's office-yet another specialist I treated myself to, oh joy...)
So, I'm delighted to say now that the rest of my body has decided to align itself with all of my normal test results, and I now feel quite strong, exceedingly healthy, terribly joyful, and humbly grateful.
For me, all it took was some tweaking of my thought-life, refusing to invite the yuck-monster into my consciousness, and promptly booting him out if he ever crashes the party, lol. I'm sure you've met him. He's the meanie who tries to torment you with fearful thoughts about your symptoms, your future, and your health. I've simply evicted him and put him on notice that he is no longer welcome. And now that he is out of the way, I am free to live, laugh, and love without hindrance.
This is what finally got my symptoms to come under my authority, not the other way around.
Hope this helps...
Keep us posted about your test results, ok?
Peace to you...
Sue
I was just teasing about the exhausted part, not to worry.
No, none of my auto-immune stuff ever came back positive. I am utterly boring in all of my normalcy, lol. Not one stray molecule in my entire body, only perfect homeostasis. Even my cholesterol is perfect. I would do Martha Stewart proud.
This was why I was so crazed because no one could ever find anything askew, so therefore it was determined that I was simply another hysterical woman with nothing better to do with her time and money but go to doctors and have needles inserted into her body, lol. (Oh, I forgot to mention the catheterization I endured at the urologist's office-yet another specialist I treated myself to, oh joy...)
So, I'm delighted to say now that the rest of my body has decided to align itself with all of my normal test results, and I now feel quite strong, exceedingly healthy, terribly joyful, and humbly grateful.
For me, all it took was some tweaking of my thought-life, refusing to invite the yuck-monster into my consciousness, and promptly booting him out if he ever crashes the party, lol. I'm sure you've met him. He's the meanie who tries to torment you with fearful thoughts about your symptoms, your future, and your health. I've simply evicted him and put him on notice that he is no longer welcome. And now that he is out of the way, I am free to live, laugh, and love without hindrance.
This is what finally got my symptoms to come under my authority, not the other way around.
Hope this helps...
Keep us posted about your test results, ok?
Peace to you...
Sue
Once in a while I'll get worse than pins and needles, I'll get total numbness, like novacaine. I just had that for a few days last week in my face. I'll get like an itchy sensation and want to scratch, but when I scratch, my skin will be slightly numb and I can't feel the scratch, (so it still itches, lol.) It's infuriating! I also get the pins and needles in-ahem...like you do, but very rarely...
I often get pins and needles, but only when I've been sitting in one position for too long. My limbs tend to fall asleep frequently throughout the day (and yes, that means the durn things are awake all night, lol.) Just kidding. Sometimes I wake up with the pins and needles in my hands as well.
Twitching? What is twitching, lol? No, very occasionally I'll get a thumper here or a series of twitches there. This stuff just doesn't ruffle me anymore so I don't pay attention. I think the more power we give our symptoms the worse they get. Just in my experience, anyway.
Feel free to ask any more questions you need, you don't have to limit yourself to one. I won't tell you my bust size, though-that would be off limits.
Blessings,
Sue
I often get pins and needles, but only when I've been sitting in one position for too long. My limbs tend to fall asleep frequently throughout the day (and yes, that means the durn things are awake all night, lol.) Just kidding. Sometimes I wake up with the pins and needles in my hands as well.
Twitching? What is twitching, lol? No, very occasionally I'll get a thumper here or a series of twitches there. This stuff just doesn't ruffle me anymore so I don't pay attention. I think the more power we give our symptoms the worse they get. Just in my experience, anyway.
Feel free to ask any more questions you need, you don't have to limit yourself to one. I won't tell you my bust size, though-that would be off limits.
Blessings,
Sue
you mak eme laugh SUe.Thanks again...
I have had the pins and needles constantly in my
area for seven months. Freaks me out, and I have a hard time telling the neuro about these symptoms ok then more questions
How long have you had your symptoms?
And are you on any meds for this? and are you still having regular check ups?
My husband and I were actualy planning to have kids, but now everything is on stand by
Have you been pregnant while having this mysterious condition?Thnaks for beeing my counsellor Sue, Just forward the bill after the final consultation
Joanna
Joanna,
Sue is my counsellor! Don't be taking her from me. I don't know if she can handle both of us. Just kidding. Hang in there Joanna. As Sue has told me MANY times. With a negative brian MRI it is highly unlikely you have MS. My doctor laughed at me when I said I was still worried about MS after my brain MRI came back normal. And like Sue, he even questioned whether they saw a brain or not.
Sue is my counsellor! Don't be taking her from me. I don't know if she can handle both of us. Just kidding. Hang in there Joanna. As Sue has told me MANY times. With a negative brian MRI it is highly unlikely you have MS. My doctor laughed at me when I said I was still worried about MS after my brain MRI came back normal. And like Sue, he even questioned whether they saw a brain or not.
Now, now you two. There is plenty of me to go around, lol.
I have to admit you gave me a great laugh, though. Thank you for that!
Yes, my doctors were all very surprised and pleased to discover that there was, in fact a brain contained within my thick skull, lol.
It was true a medical marvel if they'd every seen one.
I was perhaps the first person from New Jersey they'd ever encountered who had an actual, real-live brain. That's one for the medical journals, I'd say!
Blessings,
Sue
I have to admit you gave me a great laugh, though. Thank you for that!
Yes, my doctors were all very surprised and pleased to discover that there was, in fact a brain contained within my thick skull, lol.
It was true a medical marvel if they'd every seen one.
I was perhaps the first person from New Jersey they'd ever encountered who had an actual, real-live brain. That's one for the medical journals, I'd say!
Blessings,
Sue