syntheticape
New member
I was a frequent visitor to this message board about 16 months ago and was going through the twitching nightmare that most people here know about. I suffered constant, persistant twitches all over my body. My calves, biceps, eyelids, eyebrows, lips, back of my neck, stomach, you name it, everything was twitching. Like most people, this made me extremely anxious and I did searching on the internet to see if I could work out what this was, and ended up finding this aboutbfs message board. I also went to doctors with the common ALS fears that most people have. I was referred to leading neurologists who did their examinations and tests and told me I had nothing to worry about, that it was benign. This didn't make me feel much better because I just thought that this just meant western medicine had no idea what this actually was that I was experiencing. So I just had to bear it and live with it which I did for about 12 months, at which point I thought it was something that I had to live with for the rest of my life. But then, the twitching starting to lessen in intensity and eventually stopped altogether. Now it is all a distant memory to me. I read the stories of people who are experiencing this all now and it brings the memories flooding back, but I remembered at the time I was going through it that I just wanted to know if anybody had experienced it and gotten over it. I was disheartened by the lack of recovery stories on this message board, but I thought that people who recover probably don't bother coming back to this board. So I thought I'd share my experience with people who may have just started experiencing this BFS thing and are freaking out wondering when it will stop. I know that for some people it may never stop, and my heart goes out to them, but have hope because for some people it does stop and go away completely. I've been symptom free for 15 months now. I personally believe my BFS originated from taking an ectasy tablet. I never took many illicit drugs and never have since and recommend to people that they should not take any of these chemicals because they do mess with parts of the brain that we know so little about. Good luck to everybody suffering BFS, you are in my thoughts.