Freaking Out About Body Symptoms

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journeyer80

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hello everyone I am still freaked out about whats going on with my body I have had a neuro clinical and a partial emg only the needle ..I didnt get nerve conduction study I have had lyme tests and full blood work had a ANA test to check for lupus b-12 magnesium thyroid aids syphillis CT scan of lungs and Brain and everything was normal i am on lexapro and xanax now ..well I just started KLONOPIN today and discarded the xanax also have been prescribed baclofen for spasms and twitching I have not tried it ....I have another emg ncv test extensive this time set for october 2nd but this buzzing and twitching and fatigue and fear is horrible why cant I just believe that I am oki most definately dont feel ok at all!!!also I have lost weight and developed joint pain all over feel generaly tired all the time twitching and fluttering andbuzzing and skin sensations like random flys landing and taking off I think I am developing dents and atrophy in my hands although no one else sees it and I dont think I have lost any strength but sometimes my muscles hurt for no reason like I just pitched a baseball game or threw rocks at the river all day or walked up 300 stairs twice
 
Tripper, I have been there and gone through all the same stuff as everybody else here....HANG IN THERE!! I am sure the EMG and other test will be fine...It gets better with time. I am into this thing for 9 months now and I still get a little frantic. Plan for the long haul instead of a short visit wth this...Steve
 
Hey Tripper.Your post sounds exactly like me 8 months ago. I had all of that going on and more. It took quite a few months for things to settle down, but I am significantly less twitchy now. The pain has disappeared completely, and I don't miss it a bit. BFS started for me with an eye twitch, then my whole body went nuts twitching 24/7. Along with that came pain in my tendons, joints, bones, and muscles. Not all at the same time, but different days, different pains. This is the strangest condition ever, but it is benign and it does get better. Hang in there. No new tests are needed for you to know what we all already know. You have BFS. Nothing more. Learn to live with it!BeckyP.S. My hands are skinny and dented and veiny and and generally kinda gnarled. They were freaking me out, but my neurologist looked at them and declared them perfectly normal.
 
Hey Tripper!!!I can completely relate to you! All the feelings you are having, I am currently having as well....I am feeling a lot of it is anxiety about these symptoms...As far as losing weight, It's the stress of the unknown.... It can really take it's toll on you! I have lost 14 lbs this summer as well and have gotten too thin....I make myself eat throughout the day, and am slowly putting it back on.The electrical feelings, weakness,muscle pain, joint pain etc.... I have it too - different times, primarily calves, feet, forerms, hands !! And believe me, daily, I struggle with "How can this not be something more serious?"... Hang in there, you are going to a neurologist, and I am slowly realizing, sometimes the hardest diagnosis is not having a definitive one.....I know you will be just fine!!Andrea
 
I know how you feel too! I have had this twitching in left foot 24/7 for 9 months now. I get them all over as well, but it is always in left foot.This past month I have been getting a lot of pain, hamstring, calves, ankles, feet and now my quads and top of feet near the ankle are sore. I get the same feeling, like how can this be nothing? It is real hard to believe it is just benign, but it doesnt seem like anyone on this site, who have the same sx as us, come back saying they have anything sinister. So, I guess time will tell, but I am hoping this goes away! It is quit annoying! I feel like I am 80!
 
Tripper: I have your fear and more. Since July 1 I have ad twitching all over plus terrible msucle pain and neuro sensory symptoms. Some of my pains are bad enought to cry out. I also have buring and electric like stabbing pains, pain after walking in my calves, pain in arms and hands. My arms and hands are gotten more wrinkled from maybe muscle loss which is the mosts care thing so far. I also get muscle spams that is the whole thigh muscle will just jump like but most of it is twitches. I seem strong enough but not sure at times plus hard to tell with so much pain at times. Neuro doc office tests said Ok but that was a month ago and may be worse, its hard to say as some days worse maybe weaker or more pain, some days seem better. I have had strange events like feeling like a fire ant biting my big toe and then it was awful to touch it for days, sharp electric like pain , last night another toe tingled and hurt at same time. I wake up sometimewith numb hands but that may be less now. I had like maybe 30 blood tests and all Ok, showed postive for epstein-barr for some reason and Lyme was only active panel 41 but that is not considered Lyme even though I am forester with history of many many tick bites. I check all day on muscles look, strength, swallowing, walking ability on and on. I guess the sensory stuff and the pain as bad as it is is actually my friend as seems that you know what does not present with that kind of thing so hopefully its something else. I am age 56 and was very fit, worked out every day but now pretty much disabeled from the pain and some fatigue. So far docs have said maybe fibro, maybe Lyme, maybe anxiety??. I also supspect Cipro antobotic damage as I took it not long before all this started. Did you? I wife and a beautiful sweet 11 year old daughter and pray all the time I will see her grow up as well as just get better so i can do more with her.
 
Tripper,I have had bodywide twitching for 6 months now. I have had all the tests and they all come back normal. I just saw a neuro again & he told me after 6 months I would definitly have shown signs of weakness. My clinical was normal. You just have to beleive that you are ok. If the tests show nothing wrong, then there is nothing wrong. You will be fine.
 

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