CaptainHooker
Member
My first post so I'll give a quick overview. I'm 31/m and I was pretty active, usually playing sports about 5 nights a week until i got my face smashed playing flag football (ikr... flag) and had surgery on 7/2 to repair the damage. I wasn't allowed to lift weights or exercise while I healed. So about two weeks after I got hit, my left tricep began twitching all day and got worse toward night. A week later, my right tricep joined in. I ignored them and chalked it up to my lack of exercise. on 7/24 i woke up with cramping and stiffness in my left hand around my thumb and webbing between the thumb and index finger. So I got a little annoyed and searched the net and boom.... found ALS. I immediately had extreme anxiety and went to see my GP. My bloodwork (vitamins, lymes, thyroid) all came back normal so he referred me to a neuro at Penn State. The neuro seemed to be top notch so i didn't question the clean clinical and clean emg (left arm only, 8/2) not even a faciculation recorded on it. My sypmtoms continued progressing, twitching in the arches of my feet, both shoulders, triceps, thighs. So I finally called and asked for a second opinion and was referred to a MND specialist at Penn State. I had another clean clinical and had a right side EMG that only showed facics in my right tricep and nothing else. She told me I have BFS which brings me here. As of today, my left shoulder tremors and twitches constantly and right foot (arch) twitches. I'm also perceiving my left shoulder as weak at the moment but can still use it without any problems and I can still push a good amount of weight on the bench (anxiety strength test) . Does anyone else have similar issues with their shoulder and/or feet? If so, how do you manage the symptoms. They're frequent enough that they affect my work and life in general. I've been taking a daily vitamin, anti depressant, and magnesium to combat the twitching but to no avail. Thank you in advance for any insight!
) but of course I can't say with confidence whether it's time passing and my body healing or the supplements that improved my situation. Oh and one thing I noticed. My symptoms flare up after taking IP-6 (inositol). I am testing this right now. It happened two times. I was almost symptom free, started taking this supplement and on the very same day I had increased twitching. With supplements I would advice not starting everything at once but introducing it slowly and looking at patterns and symtpoms. I didn't follow my own advice. I was so desperate and started taking everything at once because I needed to do "something". I needed to feel in control.