rumzcaneconundrum
Well-known member
Well, I guess it is time to write a 5 year update from an old timer. I know when I started on this journey, I looked forward to hearing from people that are still around 5 years later, because I knew for sure I wasn't going to be. Well, here I am. I know alot of old timers have moved on, I am sure they probably stop in here and there, but don't post much, like myself. I do answer PMs. Five years later, yes, I am still twitching, maybe a little less for periods of time, but always comes back to an annoying intensity. I have been to several neuros (3 to be exact) all seem non chalant about twitching says nothing bad. It is hard to accept those words, when you are convinced your dying. I am still here 5 years later, twitching and yes still get the ah oh feelings with long hotspots that play with your thoughts. But I can assure you as months pass by then years pass by you will come to a point that you are not wigged out and fearing every second of your life. I don't think you ever totally accept this annoying condition, at least for me I haven't. But I do know there are people out there dealing with a lot worst. I am still functioning as I always have physically. And emotionally it gets a whole lot better when you can learn to refocus those old thoughts of of a debilitating neuro disease, and as time goes by you will learn to refocus those thoughts and not dwell.The one thing that has helped me is stop googling symptoms, and take a break from this board every once in awhile.. I think most people on this board have a degree of health anxiety so the googling of symptoms is imperative to stop. That feeds anxiety, and I believe anxiety feeds BFS. It may not cause it, but feeds. into. If anyone needs to PM for reassurance, please feel free. The best thing to do for yourself is to control the emotional part of this syndrome, because that is what is going to destroy your well being, not twitching.Hugs. Ter
) God Bless