Fighting BFS: My Story

[EmeraldEve]

Hello,I just want to write in short my experience with BFS.The problems with fasciculation and craps started on my vacation in Egypt like 7 years ago where I was ill (pharaoh’s revenge). And it was getting worse every month for 2 years. I had many hot-spots and thousands fasciculation a day including tongue and in addition I had a lot of muscle cramps so I wasn’t able to do any sport. In time I simply got accustomed to it and I did not care. I also knew it wasn’t ALS since:• fasciculation wasn’t local• fasciculation stopped when the muscle was in tension I find out that the fasciculation were getting worse after using coffin and also when I was sick or tired. Right now I can say that I am cured I don’t have cramps and I have just few fasciculations a day. It was getting better and better till it stopped. But it stopped randomly I didn’t find any medicament or something to cure that. But it is good to slow down; hectic life isn’t good for you if you have BFS.

 

[Gracer]

Hi Ervd,glad to read that you are cured, but I was a bit of surprise to read that you use coffin in your daily life (probably it was an influence of pharaonic style of life). Often twiches decrease spontaneously with the time coming, especially if you overcome MND fears. And if you would have a relapse in the future, dont be afraid. it comes and goes.

 

[EmeraldEve]

caffeine was the word i was looking for )

 

[Gracer]

sure caffein really increases twithcing, while good sleep (in whatever kind of bed) really helsp to decrese them. I was in crisis hospital for a week for another relapse of my lifelong GAD condition abd found that really sedative dose of valium I was stuffed with made me mot only sleeping for 16-20 hours per day, like a cat, but also reduced my twithcing to zero. but of course this is not a recommendation for home treatment. I was under medical control for the whole week becasue of really high dosage of tranquilizators.