Feeling Overwhelmed and Scared

[BarboFour]

I have posted here twice before and I am now at my wits end. I am very scared I have bulbar. I was given some reasurance and advice from tatooed mommy and that helped but I cant kick the fear. On top of that I was talking today with my sister and a friend of hers and he brought up that a coworkers wife has als.That sent me over the roof. Im not very good at explaining things or typing for that matter but I will try. First I need to say that I have been through the als scare before from about 2003-2005 I had an emg and all was fine. It seemed to for the most part go away except for the occasional twitch here and there. Then about 10 months ago I had a bought with vertigo for about a week and then that was gone.About 8 months ago I was having alot of gastro problems that I thought were of course much more deadly problems and that is when I first noticed my left shoulder blade was twitching alot. I went and had tests run for the gastro stuff and was told results 3 weeks later and during that 3 week wait the twitching took off like crazy. I had them everywhere all the time just like in 2003. I got my results from gastro and he said I have ulcer , gerd , hiatial hernia and spastic colon. Also after the endoscopy/colonoscopy I started noticing a lump in the throat feeling. I then started with my tongue twitching then. Anyways I have sometimes dry throat alot of mucous sometimes excess saliva. I also get alot of throat noises and I feel like my food sticks somewhere towords the bottom left of my throat. I am really scared. I get alot of twitching from my waist up but also have them in legs feet. My tongue is still strong andI dont have a hyper gag reflex. I think I read that you get that with bulbar somewhere on here.I am still strong everywhere else. Its the swallowing that is scaring me. I feel like it could be weakness. I have read that hiatal hernia- gerd can cause swallowing difficulty but nothing specific. I know you all have alot of info on this and I am hoping you can ease my mind. I had alot of stress also before all this started. Alot of loss in a short time. I am praying this is stress or gastro related but my mind wont let go of my big fear.I also get like pin pricks here and there and even on my tongue. Please excuse how unorganized and hard to read this post is like I said I cant type well and have a hard time communicating this stuff. I hope someone can ease my fears.

 

[InkedMama]

Hi I know what your going through- just wanted to tell you your recent confirmed gastro issues can cause swallowing issues- but not only that since I was about 15 I have what I called "starled swallowing" and if I thought about swallowing something before I swallowed I couldn't do it ..it would take me few tries.Relax...Lovely

 

[CautiousExplorer]

1. We cannot help you. You must get help; either from a medical professional or a psychologist to overcome your anxiety.2. All of the symptoms you mentioned point towards anxiety. After my stressful period where i feared about ALS due to twitching, i started to have gastro problems and spastic colons aswell. Its just IBS caused by anxiety/stress. I still have these sensations and its perfectly normal. Now i think i have aids because i have oral thrush ( which could be due to stress/anxiety ). But thats what happens when we look for symptoms on google; we focus only on the worst-case scenarions when there are 1000 of causes. 3. If you really had bulbar, you would've noticed it by now, since its spreads allot faster then all the other ALS types. I think your overreacting which is normal when your anxious. You see, when you have allot of twitches in lets say your left hand, you start to focus on that spot on a sub-conscious level.. and all the sensations that you normally perceive as normal are now perceived as 'caused by a horrible, uncureable disease'Take care of yourself

 

[BarboFour]

Thanks so much to you guys for replying. I need alot of reasurance at times and it helps to get the opinions of people that have been there and are educated on the subject. Thanks