Feeling Like Someone is Messing With Mind

[styx5690]

Its late again, about 1:45am. Im up again feeling like someone is messing with my mind again. In prevoius posts I have laid out the terrifying symptoms I am having so I wont go there again suffice it to say they seem to get worse each day. I first noticed the weakness a year ago so I went in for an EMG, it was clean. Here I am a year later and the weakness is worse. My family thinks I crazy. They say its all in my head, but how can weakness and a huge dent in my right hand be in my head? How can significant muscle loss in my right foot be in my head? Etc...etc...I dont know what to think. I hope this is all in my head but at the same time I cant ignore the real things that are happening to me. Im rational most of the day so I think that I am being rational about all of this as well. Im probably wrong about that but the symptoms dont lie. I dont want to go back to the neuro, I just want all of this to go away. I dont want another EMG. I dont want to have a**. I wish I could convince myself on my own that all of this is just some extremely weird coincidence and that my symptoms are not a** but something else entirely. Its hard though. Anyway, ,Im up and just needed to vent.

 

[rumzcaneconundrum]

Will,

If other people have looked at the areas you believe to atrophy and they don't see it. It is probably your mind playing tricks on you. It is my understandiing the atrophy in ALS is unmistakable.

I hope you feel better soon.

Terri

 

[SirTrouserz]

Hi Will,

I'm sorry to hear that you're going through this difficult time. The thing to do, in my opinion, is to find the best neurologist in your area that specializes in immunity(autoimmunity) as a starting point. There are a numer of neurological autoimmune conditions that can cause the symptoms you are having, so you have to find out the root cause of your problem.

You had the EMG and all was fine, so start thinking about autoimmunity as a possible cause of your problems. PM me if I can help.

Going to the neuro was one of the hardest, scariest things I ever did, so I fully sympathize with your fear, but living with the disabling terror this can cause is something no one can do alone for very long. I know how you feel.

Best of Luck,
Sir_Trouserz

 

[Gelianna]

I'm dealing with the same thing right now. I have perceived weakness in my left hand and left ankle and feel like I have some atrophy. I'm going back to the neurologist next Tuesday.

I don't know anything more to tell you than what I did in your last thread. Coincidence or primary cause, you need to go to the neurologist. ALS not the only thing that can cause our symtpoms, even the twitching, weakness and atrophy. And if we don't see the neurologist, we're risking permanent motor loss for no good reason.

 

[boysGrandmaof3boys]

Will,

What part of AZ are you in? If you find a neuro that also specializes in autoimmunie, let me know...I'm looking for one too! Although, I do like my neuro (located in Gilbert) and am not sure if I'd want to find another or not.

I'm sure you're fine....it's hard to believe, for me too....but we just have to believe it. Other people that aren't in our shoes don't understand what we're going through...that's why friends and family think it's "in our heads". But we're all here for you!

Take care!!