Feeling Alone in Neuro News Tomorrow

mommyLDN

Well-known member
I cant believe that over 73 people have read my 2 post and only 2 people have responded, I really feel like I'm going to get very bad news at the Neuro tomorrow, I'm sure you all have been where I am, but I feel very alone in this. I know I'm not walking rite, and I know he is going to say its a gait disturbance. My legs feel so weak. I just wish all of this was over, I just dont think is will ever be, I got a feeling I will be the one person on here that does get dx's with something bad. If anyone is reading this, I'm just venting, you dont have to respond.
 
When I say my legs dont feel rite, its sort of hard to explain, when I stand up to walk, for one I get very lightheaded, and then when I start to walk, my legs feel weak like I have the flu or something, but I also feel like I am walking on a spongy floor or one of those bouncy rooms with but I feel very unbalanced at the same time like a drunk. It is very hard to describe, but it is very scary, I see my Neuro today at 4:00. I'm scared he's going to be like "ya we got a problem" but maybe thats just my anxiety thinking.?. I cant tell anymore.
 
What, you think anxiety isn't a problem? From what you described, I think it's your only problem! (Just like with me)Check this out:I was referred there by Simon on this board and it looks promising.
 
The ankle clonus is what keeps me scared, someone told me that its always pathological, and cant be caused by anxiety. So I have been in this hell eversence then.
 
I'm trying my hardest to hang in there Mario, but everybody keeps saying my symptoms are just like theres, but I have as of yet to run into anyone else on here with ankle clonus and REAL unbalance and difficulty with walking. A couple of people said they have ankle clonus, and then I find out they dont even know what ankle clonus can mean or even what it really is. I know I sound like I'm splitting hairs but, some of my symptoms point to something thats much scarier than BFS. I pray that is all I have, but I do realize that BFS is no picnic either, I've read alot about it and it doesnt sound like much fun at all.
 
You are probably already at your neuro appointment by now. I don't have clonus but I do get some bad cramps. I have also fallen into the trap of reading things on the internet and not being able to stop thinking about them. I really think that doctors on the internet tend to be super conservative in what they are saying and not very reassuring because they are worried about liability. Your personal neuro who has given you an examination is a much better judge of what is going on. Anyway, good luck! Please let us know how your appointment goes. When you get good news I'm sure you can help someone else.
 

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