Fear of Multiple Sclerosis?

[GypsyDuBois]

I have been a lurker on this site for quite awhile now. I think it's pretty obvious that everyone does not have ALS for many reasons, but does anyone fear MS? That has been my constant fear for many months now. I have only read a few posts about fears regarding MS. I would like to know how common twitches are (as a presenting sx) with MS? I read on neuro forum that all over twitches are not atypical MS. Does anyone know if this is true? Has anyone reseached MS as much as ALS? Twiching/ facis are my biggest sx right now, as well as some neuropathy and vision troubles. I had an EMG, MRI, neuro exams, all blood work including Lyme, but the fear still engulfs me since this disease is so hard to dx. I have the twitches everywhere! The really pounding ones are in my upper thighs and the side of my knees, sometimes I see the movement through my pants. All this started in August! Any advice would be apperciated, this MS anxiety has taken over for quite awhile.
Thanks,
Angela

 

[dylan.dibber1]

Hi,
I just started coming to this site due to an eye twitch that started in december now has progressed to all over twitches. I have read somewhere else that a person with ms did have twitches along with other symptoms. I believe I'm more afraid of als because it's fatal and fast and ms is something you can live with. I cry everyday thinking about dying. I have a neuro appt. on Feb 13. I'm afraid and anxious. You know my whole life has come to a halt. Everyday I watch how I walk, how I pick up things. Yesterday I told my husband who I wanted my parrot to go to when I die because nobody in my family likes her. (she bites) From reading these posts it scares me to get the tests at the neuro because some people think you can have 1 or 2 or 3 clean emg's before the signs are clear.

I wish someone here could elaborate on the ms thing. I'd sure like to know also.
twitching and so so sad

I :crying:

 

[DaveDiggler]

Hi,
I can tell you that the Neuro's on Medhelp said that MS is not even thought of when someone comes in complaining about twitches. They only show up at the end of the disease...when the muscles are dead. In all my research I've never found anyone who presented with twitching and ended up having MS. There are some threads on this site that explain that. I hope that this helps with your fear. You're not alone with being afraid. Most of us are or have been at one time or another.
Good luck with your Neuro appt.
-javens

 

[GypsyDuBois]

Hey, I agree with Javens twitching is not symtomatic with MS, Ithink they are more inclined to look for other things like bladder problems and your gait and blurring as symtoms related to MS not Twitching. I understand your fears we have all been where you are, the best advice I can give you is to make sure you see a Neuro get a full assessment and believe him when he tells you you do not have MS.

Deb

 

[reneecatx]

i asked my neuro about MS and he didn't seem to think it likely at all. i had some symptoms which could have been consistent with MS, like an ocular migraine earlier in the year, but certainly the twitching wasn't one of them. i suppose there are probably some people who suffer from both MS and BFS -- poor sods -- but the fasiculations that we get with bfs are apparently not indicators of MS.

 

[reneecatx]

tnr1985--

I am so sorry that you are so down on life right now. Not that this will matter to you much, but I went through severe depression months ago over this twitching stuff and I used to look out the window of my house and look at elderly people walking down the street wishing that I was that age already so that I could be closer to death.

Is there a way to get that neuro appt sooner so that you can put your mind at ease? Just so that you know, the first symtoms of ALS are hardly ever (if ever) twitching. From what I've read, twitching is one of the last stages of ALS...when the muscles are dying. As for MS, a very good family friend has had MS for years. It is hard for her to move around as the disease has progressed but she does not have twitching anywhere in her body. I don't know if twitching does occur with MS or not but I bet that your twitching has nothing to do with MS at all.

Anyway, I am not a doctor and am still very ignorant about this stuff...except for the part of being depressed. As I was going through all this, not only did I see medical doctors, but I also saw a psychologist and sleep specialist to help me overcome this. I'm not proud of how emotionally weak I was, but I am trying to give you hope that you can get through this and there is a light at the end of the tunnel.

Please keep us up to date with how you're doing.

--David