Fasciculation Flare-Up: Worried & Unrelenting

[TrisTrip]

After weeks of getting much better and seeing massive reductions in my fasciculation’s I developed a nasty flare up.

Last night my right bicep was going like crazy. It seems to stop when I’m up and about but when I lay down and try to relax it goes nuts.

It’s got me freaked out and I can’t seem to ignore it.

Any time I get bad fasciculation’s I start to play the “what if” game; what if it only gets worse, what if it drives me insane, what if I lose complete control of every muscle in my body, what if I have AL*!

I’m really freaked out and scared. I guess I need a talking down and some reassurance.

Wow, I’m so needy

 

[sarahnicole]

Hang in there I've been going through months of hardly any symptom's to big flare up's for 12year's.And I'm still here just as sane as ever but if you had asked me 12year's ago I thought for sure I'd be dead by now or insane from this but I'm not and you won't either 12year's from now.So just try to calm down,relax and this to shall pass

 

[constance41]

trijef , ive had that twitch before. write now my right foot , the big toe and 2nd from the end are waving left and right and i just had an emg in that foot on friday and it still sends doubt in me. but i just walked about 2 miles and i could still do that . take it easy , i know how this sucks and drives your mind mad. I hope u feel better soon KLAG

 

[MorrisM]

Ugh, flare ups, tell me about it. Just a fact of BFS I'm afraid. Much better to get used to the idea of getting them than getting yourself worked up every time you do have them. My body's going mad at the moment and I haven't done anything unusual, no extra stress going on, but boy do I have a lot of twitching, and such a huge thumper going in my thigh I can actually point it out to people as it's so obviously popping away.

 

[TrisTrip]

MarksmanS said: "...What if your fascics suddenly stop? What if? What if?..."

This makes so much sense to me, Thank you very much.