Family Reunion at School

[TwitchyGambler]

So today I was doing a training at a school and I saw my cousin. She is my dad's first cousin and my second. To give you a little background on those who don't know me my dad was diagnosed with BFS by Dr. Rivner in 1994 (he's duly noted in the ALS community and on all the major ALS sites)( at the ALS clinic in Georgia. I was told mine was probably Fibromyalgia but my neuro did say my twitches were benign. My neuro asked me if I had any Cherokee in my family and I said yes my great grandmother was straight off the Natalahalia Reservation. He said then that I inherited this from her. He said people of the Cherokee descent have lots of twitching and other sensory issues. So anyway I kind of walked up to my cousin and said so I know this is strange but we have the same grandmother and I was wondering if you have twitching. She looked at me funny and I told her what was going on and to my suprise my cousin - her sister is having a lot of the same issues that I am. She twitches a lot and sometimes she passes out right after she has a twitching spell. My cousin gave me her number and i am going to call her tomorrow. My cousin also informed me that her sister is going to the Cleveland CLinic December 15th. I have heard some of you mention that clinic on here. THen my cousin told me her daughter complains a lot about twitching and it really annoys her. Her daughter is 22 and I am sure has never googled her symptoms. She said that Jacq has complained for the last couple of years about annoying twitching. I thought how odd. This makes 5 of us that have this issue. I wish we could pinpoint this issue. I know its BFS to some degree but its really so much more. Not saying its deadly or debilitating but its something else with it. Wondering how many of you have BFS in your family?

 

[mommyLDN]

Well I really dont know how many people in my family have BFS, but I do know that my mothers side of the family are of Cherokee descent on both of her sides with her mother and her father. I dont know how much that has to do with my situation or not. I do know my mother has had Fibromyalgia for quite some time, and she has told me that she does have twitching but not the 24/7 calf ones, just random ones every day.I wish you had asked that neuro to explain to you his reasoning on the whole Cherokee twitching thing.If you ever get any more info on this subject, please let me know, I'm intrigued. Although theres alot of people on here with no Cherokee in them I'm guessing so...Take Care youRobynn ) .

 

[TwitchyGambler]

I asked him about the Cherokee connection and he said "they just have twitching and sensory issues" You can google Cherokee and Fibromyalgia and you will see a couple of articles on the situation. I know that Aussie guy and Denmark guy and Germany boy don't have any Cherokee in them. It just makes you wonder. A million things can trigger this and why are some of us more prone to this disorder.

 

[BarbiePetals]

My dad has had twitching for the past 20 years or so. His calves go 24/7. It wasn't until I started twitching that I remembered watching his legs jump around when I was a kid. I immediately called him and asked about his twitches. Since then I always see his arms, legs, and feet jumping around. He never used the internet and really payed no attention to it. He doesn't even realize it's happening. So, maybe I inherited it from him.

 

[mommyLDN]

Ausssie guy, Denmark guy, and Germany boy, That was good, are we having some brain fog as well

 

[SmartMister]

Twichinstinks who is Germany boy? And Leslie do you have any Cherokee in your family? My dad has some twitches but we are all just polacks

 

[CosmicVisitor]

Interesting on the Cherokee... I am 1/8 Cherokee.. My older brother twitches as well, but not my younger brother.. neither do my parents.... Me think need special medicine in peace pipe...

 

[SmartMister]

Leslie that probably explains why we are twitching Mary

 

[mymy16]

This is interesting as I am 1/8 Cherokee as well. I know my uncle and mom have had twitching in mostly their legs. Thought it was just due to back issues. I will have to ask other family members to see how many have these annoying twitches.Shelly

 

[paucek.sheldon1]

I have no Cherokee in me. But I found your message very interesting. Thanks for sharing TwitchyGambler.

 

[FantasticFurball]

As a Denmark-boy, I presume I have no Cherokee-blood in my veins. I have, however, some family with twitching as well. I thought my grandmother (on my fathers side) was the only one, but now it seems my mother has it as well. I therefore have no chance to live a twitching-free life... After 3 ½ years of wild twitching Im still well and do some running 3 times a week. (Feets and calves mainly - ALL the time). Actually I have twitched for so long, that I do not worry anymore and dont come often on this site.Stay well and watch the traffic...

 

[TwitchyMD]

Lol.Long time ago I wrote that there is recognized very rare hereditary disorder causing cramps, fasciculations and myalgia. Basso started to attacking me that it is "crap, bullshyt" and that I am liar etc. Nice to read that and be happy as you can be sure nothing ominous is going on.