Facing Possible ALS Symptoms

[ValgerAce59]

Hi all~~
I guess alot of you have been in the place I am now, where I feel like I get something new every day, and that all the signs are pointing to als. Have you guys ever just felt like you KNEW that you had it? It's just too weird, all these weird symptoms that I'm putting all together.
I'm trying to dismiss them in my mind, thinking that maybe if I wasn't in this mental state right now, that I wouldn't even think twice about a fleeting symptom or two, but it's just weird that I keep getting more and more small signs.
I was in the mall with my youngest daughter a while ago today, and as we were getting into the elevator, I went to say something, and I can't even explain it, it's like my voice wasn't there. It was just gone for a sec. It's really hard to describe, and I can't even really think clearly back about what happened, because partly it came right back, and that was it. I feel like my voice is a little raspy today, and I have some allergy issues, but nothing that would cause this, I don't think. And, it's not like I was hoarse, it was just like I went to say something, and nothing came out. It was weird. And, I know that can be a sign of als.
That, combined with the fact that I'm twitching alot in my legs, knees, thighs, and I definitely feel weakness in these areas because of my problem knees, just makes me feel right now like I'm doomed to have this dreaded disease. Why am I being so negative lately? Is it because I'm having the symptoms I describe, or is my negativity causing the symptoms? Whatever it is, I definitely feel like something weird is happening to me. I've never had anything like this voice thing today, really freaked me out.
I go to the neuro on Thursday, and so we'll see what he says then. I have been to a couple sites recently that I shouldn't have gone to, and maybe that is not helping things.
I was just wondering if any of you guys go through this kind of state where you walk around almost assuming you have it. Also, any insight on the voice thing would be great, but I know you probably won't know anything about that because it's just so hard to explain, and so strange. Anyway, thanks for being here, I really really need to just stay on this board, and not 'wander' off!! Talk to you soon, Val

 

[ZekesTraveller]

Val
I have seen this in my sxs for a while now and it has been reported by others get it checked but I think it is the sxs of bfs and a little stress. As a matter of fact I have the exact things this very day. It will be something else tomorrow.

 

[SwiftTaySwift20]

I get the voice thing too. It started about 3 months after I started twitching. I still get it every now and then. I think in my case it is a spasm of my vocal cords.

Swift_TaySwift20

 

[lotswitch]

Hi Val,

I also have some knee issues as I've mentioned before. For me the knee pain often preceeds an onset of fasics and pain in my legs and the feeling in my knees and legs is similar. I'm not sure if there is tendon strain or somethnig wrong with my knees, but I do know for a fact that BCFS is attacking them. So your knee issues are likely at least partly BCFS and possibly the arthritis they already found.

Also, with regard to knees and weakness. I know someone who has **S. I'm not in contact with him anymore, but we have a mutual friend.

Among the first symptoms. He could not get out of the car. So we're not talking about some knee pain and perceived weakness...he physically had trouble getting out of the car and walking for any distance. And this was EARLY on (before anyone even thought about **S) and was not better some days and worse the next... it went from bad to worse. So the weakness came like a ton of bricks and it was the weakness that made him go to the Dr. and the diagnosis was quick. To my knowledge there was no knee pain, just weakness This is NOT YOU!

 

[ValgerAce59]

Thanks, guys, so much for that! It really helps to come on here and read your reassuring words!!
I keep trying things with my knee, but nothing seems to help. Right now, it hurts more in the back of the knee, and sometimes, if I hit the wrong way as I'm walking (limping)...it will hurt in the back, and sort of cramp up going down the back of my calf. It's just frustrating, because after 7 months of twitching, I would feel better by now if it seemed that nothing was progressing, but to have this makes me nervous. Thanks for making me feel better about the knee thing, hopefully it's something unrelated, or maybe the BFS is making it worse.
I just am physically busy in my life, and I feel like an invalid all of a sudden. I can't walk very far, and have to sit and watch what my family is doing. They were putting up Halloween decorations this weekend, and I couldn't help, I had to sit and watch.
So, I'm just saying, that is what has me so worried about *** right now, just that I can't get around. But, you're right, it dosen't feel like true weakness, just pain if I step wrong. I guess that could be perceived as weakness, but it's more the pain. I wish the ortho could have done something for me besides prescirbe me anti-inflammatories!! I don't want to stay on those, so I'm not taking them right now. Do you think those would help anyway? It's just like taking an advil, I thought.
Well, I do go to the Neuro on Thursday, and I faxed him over the MRI of my knees, he probably thinks I'm crazy. The lady at the desk was like, "We don't do knees here"....and I had to explain to her that I was worried that my knee symptoms might be due to a NMD. I hope he can tell maybe that my strength is ok, even with my bad knee.
Thanks again so much for taking the time to post those things, and help me out! You guys are the BEST on here! I know I always say this, but I don't know what I'd do without you guys!! Thanks, Val