christinasgirl123
Well-known member
I am really sorry that I do not find time anymore to come back to the forum more often. I have 2 Jobs now, 2 little kids, house and dog so..well....I wished my day had at least 50 hours.This is one of the still-alive-and-fine posts, I know all the newbies like 
I guess some of them habe found quite a few posts of me, so they know I have been in a physical and psychological messs, and then recovered .So today: I am fine. I twitch about the same level as before BFS ( as I have done all my life, talking especially about my calves and feet. I think they will stay forever) but nothing compared to what it used to be. Only if I am in deep meditiation or just spend a few days in a spa, those areas manage to calm down too.I still have to watch my lifestyle. I need regular exercise (not necessarily hard one, I think for me it is rather a possibility to get rid of stress hormones) and -most of all-my psychological balance to keep this in check. I am not talking about anxiety, but about anything that is making me un-relaxed. Whenever I stop to take my times for myself, I get setbacks. Whenever I allow my mind to focus on negative things (like anxiety, anger, sadness, falling back into my OCD tendences) I get very short relapses and a small taste of what it used to be.So I kind of accepted BFS as a life-long warning sign for the way I treat my body, and especially my mind.I found out my biggest trigger is my breathing, which seems to be directly linked to my psychological status. So one thing I always want to make newbies aware of is : chronic hyperventilation. As one possibility to cause or worsed BFS. And-no-you are very likely not even AWARE of breathing too fast.This is the very mild form of a constant "panic attack" hyperventilation. So especially the newbies that(besides twitching) suffer from finger tremor, hand crampyness, exaggerated reflexes like clonus and maybe also chvosteks sign: get that one checked out.Today, I enjoy my life. Once you understand that this is not killing you, you will do that again as well. But the first step is (besides STOPPING GOOGLING!!) to stop your mind from obsessive thoughts and questions. Stop constantly focusing on your symptoms. There are a lot of weird things to come for some of you (maybe you want to check my 126 sx of BFS list), others will just stay twitching. Whenever a new symptom pops up: do not google it!!! If you cannot resist, come to the board, I bet many people on here had it.After accepting the benign nature of BFS: search for your triggers. There are endless lists of possible triggers that have been discussed over and over on this board. There is no single cause, so there is no single solution. Stay open-minded for all kinds of ideas, but: relaxed. The biggest aim is now to give your head a rest, that has been tortoured for weeks, months or even years with agony. Maybe BFS can help you to live a healthier and hapier life in the end.I hope it is OK now to speak for the others:We were a whole bunch of people that came to this board back then and were very active members, and I am still in facebook contact with some of them: mommyLDN, BobJazzy, shanny63, ghayes 420, well, cat,Issi, well, a lot more. They are all fine. None of us oldtimers developed anything nasty. The reason why they are -like me- not regularly on the board anymore is very simple: we are all busy living our lives. Happy lives, healthy lives. Some fund their creativity and started a business, others finally lost their fear and could focus on their family again, others are still twitching like a peace of breakfast bacon while they are running marathons. For sure, meeting wonderful people can be a big positive point of your BFS. So in the end, maybe all you are going through now will not be a waste of time. Take care and keep your heads up hugsChrissi
I guess some of them habe found quite a few posts of me, so they know I have been in a physical and psychological messs, and then recovered .So today: I am fine. I twitch about the same level as before BFS ( as I have done all my life, talking especially about my calves and feet. I think they will stay forever) but nothing compared to what it used to be. Only if I am in deep meditiation or just spend a few days in a spa, those areas manage to calm down too.I still have to watch my lifestyle. I need regular exercise (not necessarily hard one, I think for me it is rather a possibility to get rid of stress hormones) and -most of all-my psychological balance to keep this in check. I am not talking about anxiety, but about anything that is making me un-relaxed. Whenever I stop to take my times for myself, I get setbacks. Whenever I allow my mind to focus on negative things (like anxiety, anger, sadness, falling back into my OCD tendences) I get very short relapses and a small taste of what it used to be.So I kind of accepted BFS as a life-long warning sign for the way I treat my body, and especially my mind.I found out my biggest trigger is my breathing, which seems to be directly linked to my psychological status. So one thing I always want to make newbies aware of is : chronic hyperventilation. As one possibility to cause or worsed BFS. And-no-you are very likely not even AWARE of breathing too fast.This is the very mild form of a constant "panic attack" hyperventilation. So especially the newbies that(besides twitching) suffer from finger tremor, hand crampyness, exaggerated reflexes like clonus and maybe also chvosteks sign: get that one checked out.Today, I enjoy my life. Once you understand that this is not killing you, you will do that again as well. But the first step is (besides STOPPING GOOGLING!!) to stop your mind from obsessive thoughts and questions. Stop constantly focusing on your symptoms. There are a lot of weird things to come for some of you (maybe you want to check my 126 sx of BFS list), others will just stay twitching. Whenever a new symptom pops up: do not google it!!! If you cannot resist, come to the board, I bet many people on here had it.After accepting the benign nature of BFS: search for your triggers. There are endless lists of possible triggers that have been discussed over and over on this board. There is no single cause, so there is no single solution. Stay open-minded for all kinds of ideas, but: relaxed. The biggest aim is now to give your head a rest, that has been tortoured for weeks, months or even years with agony. Maybe BFS can help you to live a healthier and hapier life in the end.I hope it is OK now to speak for the others:We were a whole bunch of people that came to this board back then and were very active members, and I am still in facebook contact with some of them: mommyLDN, BobJazzy, shanny63, ghayes 420, well, cat,Issi, well, a lot more. They are all fine. None of us oldtimers developed anything nasty. The reason why they are -like me- not regularly on the board anymore is very simple: we are all busy living our lives. Happy lives, healthy lives. Some fund their creativity and started a business, others finally lost their fear and could focus on their family again, others are still twitching like a peace of breakfast bacon while they are running marathons. For sure, meeting wonderful people can be a big positive point of your BFS. So in the end, maybe all you are going through now will not be a waste of time. Take care and keep your heads up hugsChrissi
) It is very comforting to read your journey of acceptance and most importantly to know your enjoying life. Plus you have provided such valuable suggestions. I see there are two Facebook groups 1- open and 2 - closed for BFS. Do you recommend either?