Sean, I just wanted to let you know that I also have very unusual tiredness. I think it obviously varies in intensity from person to person, but it was sort of a gradual loss of energy for me. If I think of myself last year at this time, I had much more energy than I do now. I think it depends on how much of a change this is for you in general. I always had alot of energy, and ran around alot with my kids, and now I feel like I could sleep the day away. So, for me, it's a huge difference. I look at my husband, and even though he doesn't have BFS, I watch him go to work, and think, "Wow, I could NEVER do that"....I stay home, since I am still raising my 14 year old daughter, and any extra time that I have is spent resting. If given the opportunity, I am taking a nap or laying around. It's only when the time comes to go and get her from school that I have to get some energy going, and then I somehow do that, and continue it through the night, when she has her after school activities, and then homework, dinner, etc. It doesn't just feel like the normal tiredness someone would get as they get older, it feels very unusual. I look at people much older than me that have so much more energy than me, such as teachers at school, or my daughters ballet teacher, etc., and I wonder how they do it. I eat well, take vitamins, but nothing helps my tiredness. I wonder sometimes if it could be depression, or at least partly a psychological process going on. Because, I do notice that if I'm distracted with something important, I don't notice it as much. Each summer, we head out West to visit my family, and I feel so much better when we are out there. Although, this was last summer, and I've gotten alot worse since then. I just mean generally, where we live it's hot and humid and that takes alot out of me. Anyway, just wanted to let you know I could relate, and that I think that part of it can be the mental toll this BFS takes on you, it's always in the back of our minds, right? I think that can just be exhausting. My husband says he can't imagine how I worry about something so much. I'm sure you are the same, where you worry alot. I think this goes alot deeper, meaning that just having BFS in the first place could mean that we are anxious, and that could also lead to other health issues, such as depression, tiredness, etc. Do you exercise? Drink alot of water? Eat well? I don't know, those things are supposed to help, but it's hard to stick to. I know that I try to follow a good diet, but I don't think I'm doing the right things most of the time. Sorry I'm blabbing on here, I just realized that I've written too much! Talk to you soon, Val
Sean B.