Exploring Unfamiliar Sensations

[Tulio]

I haven't been to this site in hmmm probably at least a year and a half, if not longer. My twitching started in August 2006 and has progressed into all sorts of strange sensations such as random pins and needles, buzzing in ears, buzzing sensation in feet, floaters... and some other I cannot even remember anymore. My anxiety was sky high. I investigated both ALS and MS. Had a clear MRI and neuro exam. I am happy to report that now 3 1/2 years on I have almost no twitching. If I do feel a twitch it goes away very quickly and I do not even pay attention to it anymore. The buzzing in feet comes on very rarely too. So there are symptoms that I have either gotten used to the point of not noticing them anymore (e.g. floaters) or those that have gone away. During this time I have had a healthy baby boy, and now don't even have time anymore to focus on myself. Over time I have come to think that maybe this whole drama began as a result of my bad back and bad posture (I get pain in my upper back and frequently hurt my rotator cuffs). Anyway, just to offer a peace of mind to newbies - I know how you feel now, but trust me time will be the healer. It is difficult to accept these new sensations but you WILL come to the point where you will get used to this new you and will get on with your life without being or acting disabled.

 

[Krackersones]

Thanks for updating us. Your story does give tremendous hope. I am curious how frequent, intense and widespread your twitching was at its worst. Regardless, it sure is great to know that this stuff can go away given time.

 

[Tulio]

When my twitching first began it was pretty intense. Started with an eye twitch (that lasted for 2 weeks), then quickly spread across my whole body, I had hot spots and the like. Slowly, however, this got replaced by other weird sensations such as buzzing in my feet and thigh, tingling feelings, numb spots on my body, etc. These would last for days if not weeks at a time. My fear began with ALS but was then replaced by MS. I read yesterday someone's post on here wondering how come so many on this board fear ALS but not MS. This was my question too at the time given that ALS is so rare but MS more frequent and difficult to diagnose. Although my brain MRI was clear and all the physical exams I kept thinking 'what if I'm one of those people who will go undiagnosed for years?'But then I asked myself 'so what?'. My symptoms are mild. They are not incapacitating. I can still do the same things I've always done. And since I came to accept that my symptoms have greatly reduced too. I have stopped thinking about them. I have stopped talking about them. It's just one of those little quirky things my body does as it ages. Like when your eyesight gets worse with age, or your hair goes gray...

 

[Krackersones]

Tui,Your perspective is fabulous. I hope to fully adopt it and achieve the same results that you have. I also appreciate your taking the time to give additional details. Now go back to not thinking about this stuff.Krackersones

 

[hCapitalize]

Well I hope it is the same for everybody.I just look in now and then, but I am in many respects a different person to the one who joined in April 07.I still twitch, but I just regard it as something normal these days, as I know there is nothing to worry about. I am not sure what has really brought me to this conclusion because I don't think it was any of the neurologists I saw, or my gp, I think it was the fact that I am still here, and not worse for the experience.