BomyBombbom
Active member
Ok, I am one of the people on this board with a few more als-like symptoms than most, including twitches, weakness and speech issues. If you're interested you can read my (very long) original post here:Of course I have done my homework on the internet and plowed through every site covering neurological conditions, deficiencies and cancers. I have read about syringomyelia before but only kind of brushed it off as a long shot. But lately I came across some information that made me feel there's a (small) chance that this is what I have. The pros: It's a treatable condition. The cons: It would require surgery of the spine which is of course risky.Some quick info: • Syringomyelia is a disease in which a benign cyst called a syrinx has formed on the spine. • It can present with a wide array of symptoms, most of which overlap with ms or als: limb weakness, stiffness, pain, tingling, atrophy, bulbar problems, ocular symptoms, dizziness, twitches and so on. • Symptoms usually appear between the ages of 25 and 40 but the cyst may have been present a long time before that. Symptoms can be subtle or dramatic, but are generally progressive. • Syringomyelia is more common in people with scoliosis. In a study of 41 people with syringomyelia 25 had scoliosis. because of this a report suggested that all people with scoliosis should have a neurological evaluation.• With mild symptoms the syrinx can be left untreated, but in more serious cases surgery is the only viable option. Either the cyst is drained or it is removed.Well, I am 32 years old, I have had mild scoliosis at least since the age of 15. I haven't really noted any neurological symptoms before these started four months ago but i have always had a crooked smile (far fetched maybe, I know). Does anyone have experience with this condition? Does anyone have useful information? Thoughts?
doesnt seem to be interested in that.