A bit long but here goes,
I also have a condition known as Mitral Valve Prolapse Syndrome, which is, in a nutshell, a benign normal variant of the mitral valve. That in itself does not cause any symptoms. But many who have the prolapse have an imbalance in the nervous system, which they say you are born with but it may not surface right away, could be as a child, teen or adult. The imbalance which is called dysautonomia has many symptoms. Low blood pressure, fatigue, exercise intolerance, palpitations, muscle twitching, anxiety/panic attacks, weight loss/gain, allergies, intolerance to heat or cold, tingling or numbing sensations and the list goes on. Many with MVPS also have fibromyalgia which has many of the same overlapping symptoms. Shares some of the same symptoms that BFS and some BFS'ers have.
I've struggled with racing heart beats, palpitations, dizziness, achy joints, anxiety and panic attacks, heaviness in the limbs, tingling and numbing sensations for many years. I found out I had MVP after a bout of some kind of virus I was just so tired, my joints hurt, my hands cramped. I was tested for everything under the sun, lupus, lyme etc. During that time they heard a click in my heart which was diagnosed as MVP. The rhuematologist told me I had fibromyalgia. The only thing that turned up on my tests is that I had a high ASO titer, which is a strep level. I had strep many times as a kid. I wound up gaining some sort of control over these many symptoms over the next few years, but this darn twitching has been the worst fight so far, amazing how those twitches can make you so nervous...
The end of this story...In Feb. my 39yr old cousin had a brain aneuryism and subsequently died within about a week and left behind a husband and 2 young children. I tend to react to these things long after the shock is over. I started to have some anxiety and panic issues again. Started using a abdominal exerciser and began to have a buzzing sensation off and on in my lower abdominal area. Returned to chiropractic treatment. After a few weeks of that going on I was becoming quite stressed with the twitching. I went to my daughters gymnastics tournament, was feeling kind of "off", began to feel achy etc, and lo and behold twitching and buzzing started all over. Read the "no no websites" and twitching got worse. Been to neuro, got clean bill of health then and at 3mth follow-up,,he still sees no evidence of anything going on. And the rest is history..
I notice how for some it's exercise which I started a new one then, and virus which I don't know maybe I had that day that I started to feel achy, and a very stressful time. To much on the sensitive nervous system I guess Who knows maybe it's one of these things or a build up of several things that it takes to set it off for us..
Just my long winded story and thanks for the replies so far!
I know many of us have a theory or at least can trace it back to something like medicine or drugs and others it just came out of the blue. When I asked mine he said they don't know why.