Exploring BFS Data with AI

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skenzie

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In my hunt to find connections between my BFS and biomarkers/potential causes I've come across an interesting data point. One of the neurologists I'm in contact with agreed to give me anonymized test results for patients with BFS who consented to having their test results sent to me for data mining last November. Though I am still tweaking my methods for making sense of the data (currently I'm using a pivot table/data cube) one thing that I've noticed is that about 1/3 of the patients have Bilirubin levels > 1.0 MG/DL (reference range 0.1 -1.2 MG/DL). While most are still in the reference range, this level of Bilirubin is still far from what appears to be the general public mean (0.3 MG/DL). I compared with my last metabolic panel which showed 0.7 MG about 1 month prior to the twitching/stiffness, and decided to request another test. My results came back yesterday, and my Bilirubin level is now 1.5MG (outside of ref range).There seems to be a relation between some cases of BFS and Bilirubin levels, however I am not certain to whether high Bilirubin levels is a cause, or an effect. I currently have 43 sets of results, and I don't have any information about how severe each case of BFS is, nor can I contact any of the original patients. If any of you would like to send me your Bilirubin level/BFS severity information (either in the thread or by PM), I would be very grateful. I plan on posting online the analysis results of this and many other interesting statistics I've found (for example there also appears to be a connection between GERD, IBS, and BFS).
 
therer is definitely one of gall bladder syndromes (can not recall a name, sorry!) which is suspected to be realted to twitching, and it is with high bilirubine levels. I remember it was several times raised in discussions here. The syndrom itself is also considered as benign becasue usually no physical reasons like cholecystytis are assosciated with high bilirubine in those persosn.Mine seems to be normal.
 
I like this kind of initiative and I am OK to be in. I have not been tested on my bilirubin level, I will ask next time I see my gp. In the meantime, what would be the other data usefull ? Do they need to be translated in english before sending ?
 
I have heard Bilirubin implicated in Chronic Fatigue Syndrome, so you may have something there. Here are my last Bilirubin results:March 19 - 0.5 (range 0 - 1.2) severity nonexistentMarch 28 - 0.6 severity nonexistentMay 8 - 0.8 severity nonexistentOct 5 - 0.7 severity strongOct 18 - 0.4 severity strongJan 22 - 0.6 severity mild
 
Intresting post Sko... back a few years ago when I had extensive lab work done, I also had elevated Bilirubin level as well. Also, i remember getting it rechecked again three months later, and I was back in normal range. From what I recall my practitioner saying, is that it is normal for the levels to fluctuate, sometimes fatigue and stress can cause this. Also, she was not concerned with Gilbert's syndrome as I was, because they levels would have to be high enough for a dxs. Either way, it is also a benign condition. I believe for me my elevated bilirubin level is genetic, because I have a few cousins that have it as well and they do not experience any fassics like I do. Who knows. If I dig out my Lab work and get the exact data of my results i'd be glad to participate. Interestingly enough there could be a connection...
 
I just came across this post...I have Gilbert's!!!! I get slightly jaundiced when I try to fast...and guess when my twitches are the worse? In the morning, after a long night of not eating. I wonder if I wake up for a midnight snack or three if that will help????? Cool.
 
I have Gilberts syndrome Also have alpha1 antitrypsin deficiency and Chronic fatigue. high ferratin / iron storage disease, anti smooth muscle postive . The Hepatologist i saw said my neuromuscular problems are a separate entity and not related
 
I have yearly physicals with blood test. I have been twitching non stop for a little over 2 years. My bilirubin levels have always been high between 1.5 and 2.1. My Dr said it was nothing to worry about and that all my other levels were ok. Never thought it could be linked to twitching. Interesting.
 

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