Exploring BFS Causes & Relief

[SparkySunshine97]

Hi all,Went to see my Neuro yesterday with my annual visit re BFS. Fasics and toothache like pain in my calves prompted visit no 1 in January 2010 - Spine MrI clean don't worry it's anxiety chill outVisit no 2 back in January 2011 - full brain and spine MRI clean, EMG clean. Winning ticket it's BFSVisit no 3 - fasics in calves, and around body, but lots of pain and burning in calves, biceps and forearms. Feel like I'm in a bubble, foggy headed. Go in to chat, examines me and says no chance ***, no chance MS. Really don't need to run any tests relax....Relax! How can I relax with this pain discomfort and sensory crap. Does any one else suffer symptoms like mineThanks

 

[christinasgirl123]

Hey Pete, I have been and am still going through pain/sensory crao stuff a lot, it is very common here and a big part of this BFS/CFS crap we are just going through

 

[SparkySunshine97]

Hi christinasgirl123,Thanks for replying. I'm not so much worried about the fasics as mine aren't thumpers. But it does get me down with the pain and discomfort as it leads to tiredness. Since BFS kicked in again I haven't really slept. Probably 4-5 hours max. My Physio has told me to see the doc for some anti depressants, until I receive my CBT counselling. He was showing me and article where depression combined with seasonally affective disorder or sleep disruption leads to exhaustion. That in turn drives the bodies fight/flight responses into releasing excessive adrenalin in nerves and muscles that are already sensitised.The result is disruption to muscles and nerves which increase pain.I'm trying to work out the correlation in my episodes as winter definitely seems to be a factor. What meds do you use to reduce the pain?

 

[christinasgirl123]

I am using Ibuprofene, which helps abit for some pains. When I have the feeling my legsare explodind, I use some Kytta balm/chilli balm deep heat, whoich seemd to help. So does it when neck /shoulder pain is bad. I will be seeing a Fibromyalgia specialist on monday who will hopefully be able to help me to deal with the pain (actually, there's no official BFS diagnosis here in Emilyomousey), most docs that do not call it "nothing" or "somatisation" call it CFS which includes a lot of benign twitching, sensory stuff , tremors and pain. I have found no help for the other sensory stuff so far, but it is just a minor nuisance which makes me wonder but not suffer like the pain and stiffness.

 

[SparkySunshine97]

Cheers rain dog I'll look into it. Much appreciated )