Experiencing Vibrations and Twitches?

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BartOne

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Hi all,How do you experience the vibrating, buzzing feeling. For exemple when I sit in a chair I feel my body vibrating all over. You can't see it on the outside but inside I'm vibrating really hard. Is this the same as with you guys? I was doing well the last couple of days until I read here a post where someone said that her neuro said that twitches are the first sign. How is it possible that I can convince myself that it's true, there are hundres of posts here saying that in 94% this is not te first symptom. Everytime I read something 'bad' I'm back on the *** track again. Stupid me! It's been 10.5 months now..Best regardsBart
 
Hi BartIm sorry for you and me and everybody that have this problem. The things you descriping I have alot... Often in one arm, I can feel it really bad but I can see anything! Probly something that comes along with every thing else in this f*cking thing.Im REALLY scared right now after reading your post, that a doctor said that twitching can be the first sign. :( That was not what my doctor said, oh, why did this happend?
 
Don't be scared because this is not true. I just wanted to point out that my mind can play tricks on me. I read here a post from someone who has been to a neuro but this neuro said that twitching comes first. But ofcourse this is not true. Maybe a bad neuro or one that does not know much of MND.
 
to angus_glover,Do you still worry about your symptoms? Are you over the *** fear? Just wondering how you deal with it since you also have this for 10.5 monthsBart
 
Bart & Angus,Shaking and vibrating is my most prominent symptom too. My calves are where I mostly feel the buzzing/vibrating sensation. My arms, upper body and sometimes legs is where I feel the internal shaking/tremor feeling. It's really bad for me when I wake up and before I fall asleep. Also, I get the dull muscle aches. Mostly in my legs. My legs haven't felt rested or refreshed in the morning for over a year.CDC
 
Just so you know...it's not uncommon and it won't kill you. I have had this buzzing, vibrating, trembling sensation for going on 5 YEARS. It IS most noticable when lying down to sleep, or like cdc said, upon awakening. It's strange how when I am up and about with my day, I am never aware of these symptoms. The only exception is buzzing in my left leg which is constant. I too have tired achey legs when I get up in the morning. Some days more so than others. Relax and stop worrying. That will only serve to intensify your symptoms. I know these symptoms can be uncomfortable, but they aren't fatal.
 
My left arm has been vibrating hard for almost 2 years, there is a constant buzzing feeling in the arm, when I lay my arm on my desk it is like "BZZZZZZZZZZZZZZZZ" then when I lift it "bzzzzzzzzzzzzzz" I also get this in my legs. Also, you need realize there is so much misinformation out there about ALS, you have to go with the the concensus, which is the number on presenting sign is weakness, real weakness.
 
Hello everybody!Its so good to know I am not alone and that I am not going nuts! I'm an extreme newbie so if I don't know the rules just point me in the right direction. I've noticed there seems to be no actual mention of the bad diagnosis's by name. Is this etiquette? I hope I'm in the right place because the word 'benign' is kind of comforting. I have had the EMG and it checked out fine, the brain MRI was also good. My neurologist, who seems to dislike talking, said that all is well and no need for further tests. Why am I vibrating then? He had no explanation, other than anxiety disorder. Why would I go for a jog on the beach and develop anxiety when I finished? Its been 2 months and the feeling has only gotten worse. It started out like that feeling you get when you just avoided an auto accident; shaky, jittery etc.. and morphed into constant pins and needles with strange twitches. Now I have terribly achy legs to go along with the other junk. I'm not weak and can function alright, but I'm certainly scared to death as to where this is going. My initial symptoms accompanied 14 days of diar*** and stomach aches. I assumed it was the stomach virus that caused it. After 2 weeks of convincing myself it was an electrolyte imbalance from dehydration, I decided it was doctor time. Is it just me, or do doctors only know how to prescribe penecilin these days? No offense to doctors, but I seem to get my 10 minute session and next to no answers or ideas. If it wasn't for the internet, I'd be clueless. My neurologist never brought up ALS, MS or Parkinson's (sorry if I mentioned these by name) at all. In fact he gave me nothing but a clean bill of health. If I'm healthy, why do I feel this way?I am trying not to dedicate my days to worry, but up until this started I didn't have a care in the world. Now I see my beautiful retirement plans of golfing in the sun going out the door, and my new future looking a little worse than I had hoped. I am hoping that I end up getting past this whole ordeal. I wake up every day with one thought, and one thought alone; is it gone? So far 60 days of the wrong answer.Can this all be in our heads? I too function best when I'm not resting or thinking about it. While I am too scared to go golfing in this condition, I still work around the yard and even risked getting up on the roof to make a repair. Morning and evenings are the worst. I wonder if this is a higher power's way to stop me from wasting my time watching sports? I'm starting to dread sitting on the couch because I notice everything, from eye twitching to that constant internal vibration. It all makes me so mad. I guess I should just hope and pray that it doesn't lead to something worse. Hearing that people have lived with this for much longer than me, without becoming worse gives me a new hope. I can learn to deal with this, but not the worry that this is about to become much, much worse.Thanks for all the posts everyone. I'm hoping we all get through this. No one deserves to have to worry constantly about this sort of thing. Life can be tough enough without these annoying symptoms to make it even more so. I guess I'm not quite at 'acceptance' yet. I'd prefer to just get better.
 
I am over the ALS fear. But haven't we figured this out yet :unsure: BFS is a hell in it'self How Bad for me :unsure: My wife has been great dealing with the stress this can put on a family for 13 years. Until now. She has to gone to her parents. There are other issues of course but there is no doubt (she has admitted this) that BFS is at the top of the list. Luckily we do not have children. Sometimes I dont know which is worse. Would my wife leave if I had ALS :unsure: I dont think so. And if I did Have it I would certainly be dead by now and I would'nt have to worry about anything. Dont get me wrong I am dealing with this as well as I can. I have been through a lot i n life and I am still plugging along. I just dont get it sometimes, we keep looking for "Mr. ALS" when "Mr.BFS" is bad enough.
 

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