Experiencing Fasciculations: Help!

Highlights Only
N

NordicPrincess

Well-known member
Hi you all,I wonder how your fasciculations is? In my first 6 mounts I had mostly one fasciculation (one "boble" visable in my skin) at a time, and then another came seconds later ANOTHER PLACE and so on it went.. I also had series of fasciculations THE SAME PLACE but not as often. Therefore it was hard to show it to other people, I said: "look, now it was in my leg!", but when they looked there, it came another place... But the last 3 mounths it has been the other way around - I have far more "series" than single fascis. Therefor it's much easier to show it to others, and to tape it. And I seldom have singel ones. Some series are extremely fast - like 30 very fast fascics after each other at the same place, and then other serie comes another place, and some series are more the same frequency as my pulse, or slower. It's probably at its worst when I wake up in the morning. When I strech or move my foot, I trigger series in the butt, in the leg and so on, and when I strech or move my arm, I get lots of fascics in arm/shoulder and so on. Can someone here recognize this?
 
I am feeling bad that I post so much, but yes, that is like you are my twin sister!First 8 months I had single twitches, although it all began with the all day index finger twitch. Now only single ones, I was noticing I don't have more than one at the same time. Neuro didn't see them and I told him: here and it was all over and second later: here and it was over. I couldn't show it to him. Ok, my foot was always twitching but he didn't saw them either.Anyway, last 2 months I have more series like rapid ones and to my unfortunate anxiety, I have more long ones. The 14 days 24/7 thumb twitch put me over the edge last month. Since then it had subsided but I have in hip 12/7 twitch that is there half the time of any day. I have leg twitch now lasting days. I have less singe ones now. But now I can show you one or two at any time. It is dedinitely changing and not for better, all in all I have more of them now. And today half my face feels half numb and half my neck. Wierd.I also have most of them in the morning and night, when I change position it stops and starts, some twitches don't mind position of sleep. I go from the bed many times because I can not stand the popping around my body, if I stand up I can at least distract more and some of them (like shoulder one) are rarer when I am up then when I am lying. Last months I have hard time to lay down, I don't know how to turn to not twitch, that my arms and legs won't be asleep etc. This is beggining to trouble me.To cut it short: Your symptoms are like you would be descibing me. I'll ask my mother and father about any hidden twin sister I may have in Norway ;) Ok, kidding now ;)I also have a lot of paresthesia like you say. But I didn't go to MRI and I seem not to be much scared of MR as my fear are different.Take care, you seem normal in BFS ubnormal sensations ;)PS - And I also got shoulder pain in both shoulders since my vacation and I can not get rid of it, I have hard time lifting arms above neck line. I didn't answer there, because there are enough of my posts today already. But then I though you are my twitch sister :-/
 
My symptoms started with a lot of pain and parasthesia, then a few weeks later the twitching came in. For one week or so it was really bad and especially in my legs.It popped everywhere, if I look back to it I think it were single 'pops'. I couldn't show it to the neuro or anybody else because at that moment the twitching was suddenly gone. How interesting is that?Anyway, the last few weeks I feel the twitching primarily in my calves, ankles and feet and it does feel more like series. Sometimes single, deep, 'pops' occur in my arms. But for me it is not 24/7 (at least I think it is).So I still worry sometimes (I'm working on it :) ) as my symptoms started with pain and not with twitches. Besides that my pain/stiffness/parasthesia are more present than twitching so I do not know if that also is common with bfs?
 
From what I read here and I read a lot is is in many people. I have more pain/tingling/numbness/buzzing problem than twitching problem, it started with tremor and numbness for me anyway. I write more about twitching because that is what scare me, it is not what "cripples" me, pain cripples me so I can not do this and that.Yes, BFS is for many much more than twitching, unfortunately, but also not. Seems we are all in the same boat.
 
hihi, yes we are much alike;) floydian: why should you be more worried because it stsrtrd with pain? it also did for me. diahrea, horrible pain in hips, buttocks, feet, for some weeks, then paresthesias in the pain area, then fasciculations came along..for me the paresthesias are the worst symptom, then the pain, third the fasciculations...even if i feel them almost any minute. hugs
 
ok, i see. i have a lot of nerve pain, and it was my first symptom.. i think nerve pain is a part of the BFS picture..even though i get the impression i have more pain than most people here. (maybe pain is mot that much discussed). take care
 

Users who are viewing this thread

Total: 1 (members: 0, guests: 1)
Back
Top