Experiencing Body Sensations?

CautiousExplorer

Well-known member
Has anyone experienced this? where a part of your body like a finger feels cold or 'wet' all day long? What about a sudden onset of a fatigued feeling in a limb? Althought i had a clean MRI and the neurologist didnt gave me the BFS lable ( because he obviously never heard of it i guess ) i still choose to believe that i have it.. i just have to put a lable on it to accept what i have; which was quite fustrating when he throwed me out of his office.. no real diagnosis except that its benign. Im still wondering if these symptoms are common in BFS? most people have just random twitches.. some have pain symptoms to.. but i seem to have ALL reported symptoms from time to time. Maybe im just an extreme case :LOL:
 
Uh-huh. Think that the surface nerves are overly sensitized. Sudden onset of fatigue is common for me, in separate areas (usually legs) or all over. Why give so much attention to all this annoyance though? It's like swatting at flys at a picnic, what's the use?You have to get it that most neuros can' t help us and since bcfs/pnhe doesn't kill they banish us from thought. They are caught up in more dastardly ailments. I go back once in a while and ask "what is this?, where did this come from, all these spasms, cramps, weird nerve things?" and I get variable answers depending on how his day is going I suppose; one day it's just cramp fasciculation, an occurrence that may come and go, next it's like a migraine, then it's a nerve-muscle predisposition that may be hereditary. He has to tell me something. Sometimes he sends me to another specialist or changes my Rx. I will keep asking every 6 months or so to see what he comes up with next. I still hope to stumble upon some specialist with an answer that is more concrete and perhaps stop taking medication.
 

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