To continue the story after... After 6 months of twitching I finally got an EMG and although the doctor who performed it (a consultant neurophysiologist with 30+ years experience) isn't able to give a diagnosis (I have to go back to the neurologist for that) he did say "No evidence of any neurodegenerative disease". Happy days.A few points that may be of interest...1. Whenever I searched on EMG I found people who were saying it was a very unpleasant experience. Not to deny that this may be true for some, I can honestly say it was pain free. Normally "discomfort" is a code-word for "painful" but both the NCV and EMG were not anything worse than mildly uncomfortable. Although if you do find it unpleasant my advice is not to mention the many locations you have had fasciculations as you'll only get more perforations
2. I was initially frightened when there was clearly noise even when I was asked to relax the muscle. However I was told, and have no reason not to believe, that there is a good noise and bad noise and the noise I could hear was the good variety.3. I mentioned that there is all kinds of 'wisdom' on the internet about the characteristics of fasciculations that may indicate that they are benign or sinister and whether any of it is true. I was told that there is no 100% accurate rule(s) but perhaps the most reliable is that people with ALS really don't seem to feel their twitches (but not feeling twitches doesn't equal ALS). If you feel your twitches and they are sudden-onset and body-wide then this is almost invariably a benign condition rather than a degenerative one.4. I was told that ALS doesn't hide. If you have ALS and I put a needle in you then I will know in less than 2 minutes that you have a serious problem. Doesn't matter if you have fasciculations at the time or not.5. I was told that in all honesty they don't know what causes benign fasciculations. It is probably more than one process but most frequently it is likely to be auto-immune.6. My doctor mentioned that he had fasciculations for a while but they went away. Having read this forum for a bit I want to know if anyone has met a doctor who hasn't had them!! They are either very common (in the informed, either through their medical training or Google?) or there is a global conspiracy in healthcare where doctors lie to patients about having had them themselves
So I now wait for a neurology appointment but everything looks a lot less scary then it did a while ago. Thanks to all that offered advice/guidance/reassurance here.GlowGreen

