Yes storming all over inside and outside. Honestly, I cant even say for sure that I have BFS, right - don't you need to be twitching for a certain number of months? Mine has been only one month? It seems premmature a bit. For those of you diagnosed early, did you still continue to worry or pray that the twitching would go away? Even though the EMG was clear I still want this to go away so I don't have to worry for the next few months. This is the second time in my life I've had to move past something. Fifteen years ago, 6 months after I gave birth to my oldest, I had all sorts of weird symptoms and parasthesias (similar to BFS but not quite, no twitching). I was in a bad way and every test was done, even a bone marrow biopsy. Everything came back negative and of course everyone said, 'see honey, you just have post partum depression." Then I got a phone call 2 months later, when I was feeling better and symptoms clearing, from the dr saying that the cytogenetic test done on my bone marrow showed chromosome deletions that showed lymphoma. However, they could find no active evidence of any cancer in my body with all the other tests. He told me I was one of 5 in the genetic database that had this deletion and there was no way it was a mistake- it was a deletion associated with lymphoma. They couldn't say whether it meant that I had the disease, would get the disease in 5 yrs, 10 yrs, etc. or if several factors (environmental, genetic, etc) had to happen in a cascade to set it off. So the advice was to put it "out of my mind" and go on on with life unless I had any symptoms. Easier said and done with a new baby, but here I am now 15 yrs later and knock on wood no evidence of that disease and believe it or not I did put it out of my mind b/c how else can you go on? So everytime I get something weird going on my mind goes back to that scare. And here we go again, a bunch of weird unexplainable symptoms with no diagnosis. Why can't I be one of the easy ones who twitches and they take a blood test and say, oh, Lin, your thyroid is off or you need more B12. UGH! I always have these weird extended undiagnosed conditions that take up months of testing and anxiety and have no easy answer!!!!! Thanks for all your help. I've got to chill. This was all created in my mind too. Neither of my neuro's ever suggested or suspected ALS. I brought it up to them after exhausting all other serious causes for my weird symptoms (neck issues, head rushes, back and trap spasms, twitching). I am normally a very composed person and even in the face of real medical crisis cope very well (I had open heart surgery to correct a bad mitralv valve and didn't sweat it or google it one bit because it was straightforward, no health anxeity about it at all). HOwever, I fall apart when symptoms fail to have a diagnosis. Okay, enough of me tonight. For those of you on the east coast, stay safe. Thanks again, I will stop reading the Dr. C's hypothesis and start practicing secretagentman's deep breathing exercises ....
Go outside*, enjoy life!GlowGreen* Once the storm clears!