EMG Results: Fear Not Banished?

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LovingMyBoys

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OK so some of you know that I just had an emg on my tongue and left leg. I thought for sure that it would completely take away my fear but it hasent:( I REFUSE to google because I know I will stuble upon bad info and scary stories.......I have officially ban myself from google. I have had random twitches for 15 months, but never a 24/7 hot spot like on my tongue. It really freaks me out. They did my tongue emg in 2 different places. He told me "do you feel better? because you should all was normal!". Ok so I felt great that day, then the doubt set in. If I only had twitching there for 7 weeks would the emg have picked it up? Is it really VERY accurate? Does it always pick stuff up way ahead of time?? Am I really able to let this fear go?? I would really apperciate any GOOD and positive info on emgs. Like that they are accurate and very reliable on ruling out als.......and positive stories about what nueros have said, like telling people afterwards that they need to be worry free now. I really apperciate it, PLEASE no negatives........I cant handle any right now.......I need reassurance and strength to get over this.......I hope im not the only one who hung on to this, but I pray that I can get strength to accept this and STOP worrying!!!!
 
I felt exactly the way you did after my clean EMG.The relief lasted about 30 minutes and then the doubt set in: what if I hadn´t twitched long enought for the EMG to show I did have something terrible going on? And I freaked until I had the second clean EMG and even now I still doubt the results. But I came across some very intersting interviews from Neuros who confirmed that the EMG WILL show it when muscles are dying even when you yourself haven´t even noticed it. So: please relax. There is absolutely nothing to worry about any more. And there have been several posts in this forum that state that a clean EMG is your ticket to freedom.
 
True tongue fasciculations in ALS are caused by denervation of 12th cranial nerve (hypoglossus) and EMG would not miss it as its only nerve supplying motor function to tongue (so they cannot test "wrong" nerve). If the EMG was clean, then your tongue twitching is not caused by denervation and thus no MND. Do not worry, I have tongue twitches and have not had tongue EMG - I confess, I am coward and will not undergo it :)
 
You're the only one being negative. Twitching for 15 months with a clean bill of health from your neuro, what more do you need that you dont have ALS. You can be annoyed or frustrated with the twitchy tongue. Thats understandable. But get a grip and stop being afraid about it. Time to concentrate on Christmas.....
 
You have been given the golden ticket, the neurologist i went to explained the process to me in great detail. When i saw him i had gone about 5 months with the crazy twitching and had already had two emg's and i felt the same as you, it had to be too early. i started drilling him with the questions and he started by saying if your Doc had sent you to me first, i would have never allowed an emg to be performed on you due to how the neuro exam went.( i had no issues that he could find) He said in regards to the fact that you had two done, (because i do have a good doc who knew that i used to be a sane person and wanted to get me back to that person) he said if there was any non-benign issue going on the emg would have picked it up whether i had been twitchin one hour or one year, he even said that had i not had a twitch and had bad things going on it would pick it up. It is a very accurate and reliable diagnostic tool that has been being used for a very long time and the people interpreting them have very specific training and normal stuff is very easy to see as well as the not so normal. If you have the really bad one that we all have feared hear, it is even more apparent on the emg, it has a very distinct characteristic and always presents itself at the point of twitches, it has to and they have to use the emg to confirm the diagnosis. So quit looking at any info from this point forward and enjoy the holiday, i am going to do the same.BW
 
thanks everyone:) These are making me feel better:) I realize that I need to accept it but my anxiety is running the show. I try to beat him down, but he is a tough ba*tard!
 
You might want to consider getting a rx like xanax. I took them in the beginning of my ALS scare, and they were a lifesaver. Im generally anti-meds, but when youre going through what you are (and we all have) I think its o.k. Just dont let them get out of hand. Short term, they will really help you through this. It wont be long before you realize that all this worrying was just a big waste of time.
 
Hi there. I have just left my emg exam 28 minutes ago. I'm sitting in a pub raising a glass to a clean emg. I've had 13 months of fasiculations and when I mentioned how people feared fasics would not present he laughed and said no matter what dying muscle does. Celebrate and rejoice it's benign. The funny thing is I sit here celebrating with my fasics :D)
 

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