EMG and BFS: Disappointing Feedback?

[missy77]

Yes. I am glad I got the EMG done.

However, I am disappointed in the limited feedback on BFS from my neurologist.

 

[TwitchMeSweetheart]

don't be disappointed. people here have been to some of the best neuros in the country and not got much. truth is they don't have the answer and they do not get paid to stand around and theorize with patients.

i specifically said to me neuro the hardest part of this is to accept it is benign and their are no answers, he said "it is hard to tell patients" as if he wished he had more.

take your good news and run.

 

[bignerd93]

I just wanted to thank everyone for their posts. I *think* I have BFS, and am seeing a neurologist next week. I have had twitching for over a month now, and at first was consumed by the thought of having *LS (as I've seen it put here before). Now I'm 99% convinced that I dont, and that's a huge relief, and its wonderful to see other people who have the same condition as I do and I'm not just crazy! PHEW!

 

[beensuggested]

Nope not crazy, it can make you feel crazy but you are definitely sane! Welcome!
Kit