Doomed to Twitch Forever?

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velfrost70

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Are some of us doomed to twitch for the rest of our lives? I've been twitching for over 6 years now and I have seen no decrease in severity. I have absolutely no clue as to what triggered it. I've seen a couple of GPs and internal med doctors for the twitching and they have all said that they see no reason to do further investigation. I've never had an EMG done nor an MRI, and I can't find a doctor who wants to test me for Lyme Disease. My other symptoms are occasional PrickLedPin pains that feel like someone is stabbing me with a needle. I also have floaters and tiny flashes of light occasionally, but I do have horrible myopia. I don't know what to do. I'm only in my early twenties and I'm terrified that there's something wrong with me. I used to be okay with my BFS diagnosis but not anymore. However, I don't want to keep searching for something that isn't there. Should I go see another doctor? I'm getting the feeling that my family and boyfriend are tired of my paranoia over my health. It's ruining my life and distracting me from school and everything else that I love. I'm losing sleep, crying often, not studying as much as I should be, and I spend a lot of my time going to message boards and forums for diseases that I'm worried about. A lot of people have told me that if something bad was going to happen with my health, it would have already happened. But then again, I read all of these Lyme Disease and MS forums where people had to go see a bunch of different doctors in order to finally get a diagnosis. I'm wondering if I'm one of those people who is going to have to keep shopping around for a doctor. :( It's like I can't trust the medical profession. I just don't know when I should throw in the towel.I'm hoping someone here can give me some good advice. :( I really need it.
 
After 6 years of anxiety its all up to you. The lifespan of ALS is approx. 5 years (for the lucky ones). Sinister things doesnt hide. If I was you, I would stop being nervous right away. The doc gave you a dx and it seems that they are right. You are still standing after 6 years! Have no worries but accept the twitching as a part of your body. And:1) no stress - (you are not gonna die)2) no tea or coffee - sorry mate - this is the no. 1 twitcher!3) no surfing for deadly diseases on the internet4) accept the BENIGN dx given to you by experts5) drink water (normal amount)6) do something that you like in this life - spoil yourself: movie, holliday and stuffc ya around
 
How does the twitching interfere with your life other than wondering whether it is caused by a disease that will get worse? If the worry is the only problem, then take the advice just given because you will always have something to worry about in life like everyone else. You can focus on it and feel worse or accept life's uncertainty and focus on positive things you can control. If the twitching does interfere in other ways, then please explain and I'll make some other suggestions.Krackersones
 
If I were you I would get an MRI and an EMG if possible. It wills et your mind at ease. They are non invasive tests and really help with the anxiety part because you can always refer back to the scientific data.
 
I don't understand why your doctor won't give you a EMG or MRI? The EMG is the first thing my GP ordered then she referred to me to a neurologist. Everything was normal. I would find a new doctor if I were you to put your mind at ease. Also, if you have been twitching for 6 years I can almost guarantee your fine! There would be something else wrong with you by now. It is all anxiety and fear. I know cause I am going through the exact same thing and I've only had this for 3 months. Rest assured that after 6 years, it really is benign. My dad has had twitching in his legs & arms for 20 years. Nothing has ever come out it.
 
Six years indeed rule out a lot of nasty things, actually all of them. You should be done with searching for a severe disease by now - you haven't found anything because it's simply not present.My advice: Do not worry about your twitching, rather try to get used to it. If you don't concentrate on the twitching you won't feel that much of it, you'll feel only the big thumps. I've been twitching for seven months now and the twitching hasn't got much better, it is still there and I still have bad days and hotspots sometimes. I think that it will go on for quite a while in my case, and I accept that, even if it goes on for the rest of my life. There are a lot more nasty things that can REALLY ruin your life... I wouldn't call BFS a "doom". Just think of all those people who got crippled in some sort of accident all of a sudden. Better twitching legs than no legs at all (sorry for being cynical...).By the way, I'm in my twenties, too (22 to be precise), and I haven't had an EMG either because my neuro just said that it's not necessary - and I'm happy about that as I don't like needles and other invasive procedures. And the neuro was right - after all I haven't developed any sort of disease that could have been worth checking for. But, nevertheless, if your neuro suggests doing an EMG, then just let him do it... Maybe the result will help you achieve your peace of mind about the twitching.
 
I don't know my EMG did not hurt at all. I got stuck with needles yes, but compared to other tests like ones for equilibrium etc. it is harmless. I hardly evven felt the needle, they are really really small.
 
My EMG did not hurt at all either. I did not even feel the needles. They are really small and it was no different than if I poked myself with my fingernail. Nothing to be afraid of.
 
An EMG and MRI are not necessary unless there are findings to warrant. You have been twitching with some other symptoms for 6 years! You have not gotten any worse other than the fact that your anxiety and your worry is disabling you. Why must you shop around til you find a doc to tell you what you want to hear. I have to assume that it is what you want to hear because they have told you it is benign and you don't want to believe that. You are young, you are healthy but you have some major health anxiety issues and THAT needs to be treated more than the other synptoms you THINK you are worried about. If you had a stuffy nose and a cough, would you be convinced it was cancer or TB? Even if the docs told you it was simply allergies or a cold? This is no different. You have been to the docs, they gave you your exams, they gave you a diagnosis and now you need to accept that and MOVE ON!!!!Please it is time for you to get some treatment for the anxiety.Be well.Kit
 
The docs said you didnt need an emg. That means anything bad is out of the question. Completely. If they suspected just a little tiny wrong-thing with you, they would have tested you. To a lot of people the emg doesnt seem to kill the anxiety anyway. Actually a lot get even more scared as more testing is done. They start to ask qustion about the testing. Was the emg done too soon? Did they test the right limp? How many emgs is needed? "I read a story about a guy..." etc. etc.Look at some posts here. Youll find people who surfs the neuro-market for more and more specialists as they dont believe what the doctors tell them. As time progresses it becomes an obsession: "I MUST be ill, they just cant see it." Take a step back. Take a breath. How does that sound? Crazy? You are right. It IS crazy. And please dont jump on that wagontrain to nowhere. You are young. You have the whole life ahead of you. Start living. Its never too late.
 

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